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Lessons from Disability Counting in Ecuador, with a Contribution from Primary Health Care

Author

Listed:
  • Inge Debrouwere

    (Fundación Tapori Paladines de la Felicidad, Quito 170308, Ecuador)

  • Pedro Celestino Álvarez Vera

    (Fundación Tapori Paladines de la Felicidad, Quito 170308, Ecuador
    Department of Psychology, Universidad Politécnica Salesiana—Sede Quito, Quito 170308, Ecuador)

  • Ximena del Carmen Pavón Benítez

    (Fundación Tapori Paladines de la Felicidad, Quito 170308, Ecuador)

  • Celia Katherine Rosero Arboleda

    (Fundación Tapori Paladines de la Felicidad, Quito 170308, Ecuador
    Teaching Department, Hospital Voz Andes Quito, Quito 170308, Ecuador)

  • Peter Prinzie

    (Dominiek Savio Institute, Dienstencentrum GID(t)S, 8830 Hooglede-Gits, Belgium
    Department of Psychology, Education and Child Studies, Faculty of Social and Behavioural Sciences, Erasmus University Rotterdam, 3000 DR Rotterdam, The Netherlands)

  • Jo Lebeer

    (Disability Studies, Faculty of Medicine and Health Sciences, Family Medicine & Population Health, University of Antwerp, 2610 Wilrijk, Belgium)

Abstract

Disability data are essential for policy. Yet, the predominant use of disability prevalence for service planning reflects dichotomous counting, increasingly less compatible with current disability thinking. Difficulties relate to variations in rates, the lack of matching with needs, and the use of prevalence to compare disability situations. From the perspective of Primary Health Care (PHC), we explore methods for disability counting regarding the usefulness of prevalences in identifying persons with disabilities and meeting their needs with local service implementation. First, we analyze the methods and results of six national cross-sectional studies in Ecuador. Then, we present a case about an exploratory needs-driven method for disability counting in a local PHC setting. The analysis of variations in rates focuses the attention on reasons for and risks of a priori exclusion of persons with disabilities from services. Longitudinal disability counting as a collateral result of meeting needs in the PHC setting yields local disability data worthy of further exploration. Thinking about disability counting from a PHC scope in a developing country prompted reflection on the comparison of prevalences to evaluate disability situations. Findings invite further exploration of the needs-driven counting method, its contributions to planning local services, and complementarity with cross-sectional disability counting.

Suggested Citation

  • Inge Debrouwere & Pedro Celestino Álvarez Vera & Ximena del Carmen Pavón Benítez & Celia Katherine Rosero Arboleda & Peter Prinzie & Jo Lebeer, 2021. "Lessons from Disability Counting in Ecuador, with a Contribution from Primary Health Care," IJERPH, MDPI, vol. 18(10), pages 1-19, May.
    • Handle: RePEc:gam:jijerp:v:18:y:2021:i:10:p:5103-:d:552685
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    References listed on IDEAS

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    1. Katherine R. Sorsdahl & Ritsuko Kakuma & Zane Wilson & Dan J. Stein, 2012. "The internalized stigma experienced by members of a mental health advocacy group in South Africa," International Journal of Social Psychiatry, , vol. 58(1), pages 55-61, January.
    2. Jean‐Francois Trani & Mitchell Loeb, 2012. "Poverty and disability: A vicious circle? Evidence from Afghanistan and Zambia," Journal of International Development, John Wiley & Sons, Ltd., vol. 24, pages 19-52, January.
    3. Beth Sprunt & Barbara McPake & Manjula Marella, 2019. "The UNICEF/Washington Group Child Functioning Module—Accuracy, Inter-Rater Reliability and Cut-Off Level for Disability Disaggregation of Fiji’s Education Management Information System," IJERPH, MDPI, vol. 16(5), pages 1-22, March.
    4. Carla Sabariego & Cornelia Oberhauser & Aleksandra Posarac & Jerome Bickenbach & Nenad Kostanjsek & Somnath Chatterji & Alana Officer & Michaela Coenen & Lay Chhan & Alarcos Cieza, 2015. "Measuring Disability: Comparing the Impact of Two Data Collection Approaches on Disability Rates," IJERPH, MDPI, vol. 12(9), pages 1-23, August.
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