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Subjective Oral Health-Related Quality of Life and Objective Oral Health in People with Ectodermal Dysplasia

Author

Listed:
  • Nils Niekamp

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations, University Hospital Münster, Albert-Schweitzer-Campus 1, Building W 30, D-48149 Münster, Germany)

  • Johannes Kleinheinz

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations, University Hospital Münster, Albert-Schweitzer-Campus 1, Building W 30, D-48149 Münster, Germany)

  • Daniel R. Reissmann

    (Department of Prosthetic Dentistry, Center for Dental and Oral Medicine, University Medical Center Hamburg-Eppendorf, Martinistrasse 52, D-20251 Hamburg, Germany)

  • Lauren Bohner

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations, University Hospital Münster, Albert-Schweitzer-Campus 1, Building W 30, D-48149 Münster, Germany)

  • Marcel Hanisch

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations, University Hospital Münster, Albert-Schweitzer-Campus 1, Building W 30, D-48149 Münster, Germany)

Abstract

Ectodermal dysplasia (ED) refers to a heterogeneous group of genetic diseases of the skin, skin appendages, and teeth. People with ED experience a poorer oral health-related quality of life (OHRQoL) compared to the general population. The aim of this study was to examine the OHRQoL of people with ED and to measure their objective physical oral health to confirm or disprove evidence of poorer oral health in this population. To determine OHRQoL, the German version of the 14-item Oral Health Impact Profile (OHIP-14G) was used. All the participants in the study were clinically examined, and the measured parameters were recorded using the Physical Oral Health Index (PhOX). In total, 10 male and 11 female participants, with an average age of 22.0 ± 9.0 years, were included in this study. The OHIP-14G summary score was 23.9 (±15.2) points (range: 0–56 points). The PhOX summary score was 61.2 (±5.1) points (range: 22–80 points). The findings indicated that both the OHRQoL and physical oral health of the participants were highly impaired and that their objective and subjective oral health were worse than those of the general population in Germany.

Suggested Citation

  • Nils Niekamp & Johannes Kleinheinz & Daniel R. Reissmann & Lauren Bohner & Marcel Hanisch, 2020. "Subjective Oral Health-Related Quality of Life and Objective Oral Health in People with Ectodermal Dysplasia," IJERPH, MDPI, vol. 18(1), pages 1-10, December.
    • Handle: RePEc:gam:jijerp:v:18:y:2020:i:1:p:143-:d:469159
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    References listed on IDEAS

    as
    1. Marcel Hanisch & Sonja Sielker & Susanne Jung & Johannes Kleinheinz & Lauren Bohner, 2019. "Self-Assessment of Oral Health-Related Quality of Life in People with Ectodermal Dysplasia in Germany," IJERPH, MDPI, vol. 16(11), pages 1-9, May.
    2. Ole Oelerich & Johannes Kleinheinz & Daniel R. Reissmann & Jeanette Köppe & Marcel Hanisch, 2020. "Correlation between Oral Health-Related Quality of Life and Objectively Measured Oral Health in People with Ehlers–Danlos Syndromes," IJERPH, MDPI, vol. 17(21), pages 1-11, November.
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    Cited by:

    1. Lauren Bohner & Shankeeth Vinayahalingam & Johannes Kleinheinz & Marcel Hanisch, 2022. "Digital Implant Planning in Patients with Ectodermal Dysplasia: Clinical Report," IJERPH, MDPI, vol. 19(3), pages 1-9, January.

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