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Study to Investigate the Knowledge of Rare Diseases among Dentists, Orthodontists, Periodontists, Oral Surgeons and Craniomaxillofacial Surgeons

Author

Listed:
  • Annemarie Kühne

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations (RDOM), University Hospital Münster, D-48149 Münster, Germany)

  • Johannes Kleinheinz

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations (RDOM), University Hospital Münster, D-48149 Münster, Germany)

  • Jochen Jackowski

    (Department of Oral Surgery and Dental Emergency Care, Faculty of Health, Witten/Herdecke University, Alfred-Herrhausen-Strasse 45, 58455 Witten, Germany)

  • Jeanette Köppe

    (Institute of Biostatistics and Clinical Research, University of Münster, Schmeddingstraße 56, D-48149 Münster, Germany
    These authors contributed equally to the research.)

  • Marcel Hanisch

    (Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations (RDOM), University Hospital Münster, D-48149 Münster, Germany
    These authors contributed equally to the research.)

Abstract

Fifteen percent of the 5000 to 8000 rare diseases (RDs) can manifest in the oral and maxillofacial region. Little attention has been paid to the care situation of people with RDs in dentistry. Hence, the aim of this study was to assess the level of knowledge about RDs among dentists at a university hospital (DUs) compared to dentists with different professional backgrounds and among general dentists, specialist dentists and DUs in the chamber district of Westfalen-Lippe. Moreover, self-assessment of the level of knowledge was evaluated. A questionnaire was designed, which was made available digitally via a link. A random sample of 1500 dentists, specialist dentists, and oral- and craniomaxillofacial surgeons from the membership of the Dental Association of Westfalen-Lippe, and all dentists, specialist dentists, and oral- and craniomaxillofacial surgeons working at the University Dental Hospitals Münster and Witten/Herdecke, were invited to participate to our study. Differences in the level of knowledge between DUs and non-DUs and differences between DUs, general dentists, and specialist dentists were tested via two-sided Fischer’s exact tests. Differences between the three groups of self-assessment of the level of knowledge and the self-assessment of how sufficient their own knowledge about RDs is were tested via two-sided Kruskal–Wallis tests. The global level of significance was controlled by the Bonferroni method. A total of 267 questionnaires were completed, of which 64.0% were answered by general dentists, 25.5% by specialist dentists and 10.5% by DUs. DUs had a significant higher level of knowledge about RDs (adjusted p = 0.012) compared to non-DUs and achieved higher scores (median = 16.5 points) than general (median = 13 points) and specialist dentists (median = 13 points) ( p = 0.001). In the self-assessments, the differences were not significant ( p > 0.05). In conclusion, most participants showed no or little knowledge about RDs, and DUs had a significant higher level of knowledge than non-university dentists.

Suggested Citation

  • Annemarie Kühne & Johannes Kleinheinz & Jochen Jackowski & Jeanette Köppe & Marcel Hanisch, 2020. "Study to Investigate the Knowledge of Rare Diseases among Dentists, Orthodontists, Periodontists, Oral Surgeons and Craniomaxillofacial Surgeons," IJERPH, MDPI, vol. 18(1), pages 1-15, December.
    • Handle: RePEc:gam:jijerp:v:18:y:2020:i:1:p:139-:d:469118
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    References listed on IDEAS

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    1. Marcel Hanisch & Sabrina Wiemann & Susanne Jung & Johannes Kleinheinz & Lauren Bohner, 2018. "Oral Health-Related Quality of Life in People with Rare Hereditary Connective Tissue Disorders: Marfan Syndrome," IJERPH, MDPI, vol. 15(11), pages 1-8, October.
    2. Ole Oelerich & Johannes Kleinheinz & Daniel R. Reissmann & Jeanette Köppe & Marcel Hanisch, 2020. "Correlation between Oral Health-Related Quality of Life and Objectively Measured Oral Health in People with Ehlers–Danlos Syndromes," IJERPH, MDPI, vol. 17(21), pages 1-11, November.
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    Cited by:

    1. Julius Balke & Lauren Bohner & Jeanette Köppe & Jochen Jackowski & Ole Oelerich & Marcel Hanisch, 2023. "Oral Health-Related Quality of Life in Different Subtypes of Ehlers-Danlos Syndrome," IJERPH, MDPI, vol. 20(3), pages 1-13, January.
    2. Eitan Mijiritsky & Michal Dekel-Steinkeller & Oren Peleg & Shlomi Kleinman & Clariel Ianculovici & Amir Shuster & Shimrit Arbel & Menachem Ben-Ezra & Maayan Shacham, 2021. "Knowledge and Associated Factors about Rare Diseases among Dentists in Israel: A Cross Sectional Survey," IJERPH, MDPI, vol. 18(13), pages 1-16, June.
    3. Flavia Rabello & Mariana Laís Silva Celestino & Natália Cristina Ruy Carneiro & Jennifer Reis-Oliveira & Heloísa Vieira Prado & Mauro Henrique Nogueira Guimarães de Abreu & Ana Cristina Borges-Oliveir, 2024. "Oral Problems in Brazilian Individuals with Rare Genetic Diseases That Affect Skeletal Development," IJERPH, MDPI, vol. 21(9), pages 1-10, September.

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