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Assessment of Health-Related Quality of Life between People with Parkinson’s Disease and Non-Parkinson’s: Using Data Drawn from the ‘100 for Parkinson’s’ Smartphone-Based Prospective Study

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  • Xiaojing Fan

    (Department of Epidemiology and Health Statistics, School of Public Health, Xi’an Jiaotong University Health Science Centre, Xi’an 710061, China)

  • Duolao Wang
  • Bruce Hellman
  • Mathieu F. Janssen
  • Gerben Bakker
  • Rupert Coghlan
  • Amelia Hursey
  • Helen Matthews
  • Ian Whetstone

Abstract

Background : This study aims to assess the specific difference of the health-related quality of life between people with Parkinson’s and non-Parkinson’s. Methods : A total of 1710 people were drawn from a prospective study with a smartphone-based survey named ‘100 for Parkinson’s’ to assess health-related quality of life. The EQ-5D-5L descriptive system and the EQ visual analogue scale were used to measure health-related quality of life and a linear mixed model was used to analyze the difference. Results : The mean difference of EQ-5D-5L index values between people with Parkinson’s and non-Parkinson’s was 0.15 (95%CI: 0.12, 0.18) at baseline; it changed to 0.17 (95%CI: 0.14, 0.20) at the end of study. The mean difference of EQ visual analogue scale scores between them increased from 10.18 (95%CI: 7.40, 12.96) to 12.19 (95%CI: 9.41, 14.97) from baseline to the end of study. Conclusion : Data can be captured from the participants’ own smart devices and support the notion that health-related quality of life for people with Parkinson’s is lower than non-Parkinson’s. This analysis provides useful evidence for the EQ-5D instrument and is helpful for public health specialists and epidemiologists to assess the health needs of people with Parkinson’s and indirectly improve their health status.

Suggested Citation

  • Xiaojing Fan & Duolao Wang & Bruce Hellman & Mathieu F. Janssen & Gerben Bakker & Rupert Coghlan & Amelia Hursey & Helen Matthews & Ian Whetstone, 2018. "Assessment of Health-Related Quality of Life between People with Parkinson’s Disease and Non-Parkinson’s: Using Data Drawn from the ‘100 for Parkinson’s’ Smartphone-Based Prospective Study," IJERPH, MDPI, vol. 15(11), pages 1-12, November.
    • Handle: RePEc:gam:jijerp:v:15:y:2018:i:11:p:2538-:d:182376
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    References listed on IDEAS

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    1. Brazier, John & Ratcliffe, Julie & Salomon, Joshua & Tsuchiya, Aki, 2016. "Measuring and Valuing Health Benefits for Economic Evaluation," OUP Catalogue, Oxford University Press, edition 2, number 9780198725923, Decembrie.
    2. David Parkin & Nigel Rice & Nancy Devlin, 2010. "Statistical Analysis of EQ-5D Profiles: Does the Use of Value Sets Bias Inference?," Medical Decision Making, , vol. 30(5), pages 556-565, September.
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