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Recasting Hope: A process of adaptation following fetal anomaly diagnosis

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  • Lalor, Joan
  • Begley, Cecily M.
  • Galavan, Eoin

Abstract

Recent decades have seen ultrasound revolutionise the management of pregnancy and its possible complications. However, somewhat less consideration has been given to the psychosocial consequences of mass screening resulting in fetal anomaly detection in low-risk populations, particularly in contexts where termination of pregnancy services are not readily accessible. A grounded theory study was conducted exploring forty-one women's experiences of ultrasound diagnosis of fetal abnormality up to and beyond the birth in the Republic of Ireland. Thirty-one women chose to continue the pregnancy and ten women accessed termination of pregnancy services outside the state. Data were collected using repeated in-depth individual interviews pre- and post-birth and analysed using the constant comparative method. Recasting Hope, the process of adaptation following diagnosis is represented temporally as four phases: 'Assume Normal', 'Shock', 'Gaining Meaning' and 'Rebuilding'. Some mothers expressed a sense of incredulity when informed of the anomaly and the 'Assume Normal' phase provides an improved understanding as to why women remain unprepared for an adverse diagnosis. Transition to phase 2, 'Shock,' is characterised by receiving the diagnosis and makes explicit women's initial reactions. Once the diagnosis is confirmed, a process of 'Gaining Meaning' commences, whereby an attempt to make sense of this ostensibly negative event begins. 'Rebuilding', the final stage in the process, is concerned with the extent to which women recover from the loss and resolve the inconsistency between their experience and their previous expectations of pregnancy in particular and beliefs in the world in general. This theory contributes to the theoretical field of thanatology as applied to the process of grieving associated with the loss of an ideal child. The framework of Recasting Hope is intended for use as a tool to assist health professionals through offering simple yet effective interventions grounded in women's experiences of this event.

Suggested Citation

  • Lalor, Joan & Begley, Cecily M. & Galavan, Eoin, 2009. "Recasting Hope: A process of adaptation following fetal anomaly diagnosis," Social Science & Medicine, Elsevier, vol. 68(3), pages 462-472, February.
  • Handle: RePEc:eee:socmed:v:68:y:2009:i:3:p:462-472
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    References listed on IDEAS

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    1. Hyde, Beverley, 1986. "An interview study of pregnant women's attitudes to ultrasound scanning," Social Science & Medicine, Elsevier, vol. 22(5), pages 587-592, January.
    2. Oaks, Laury, 2003. "Antiabortion positions and young women's life plans in contemporary Ireland," Social Science & Medicine, Elsevier, vol. 56(9), pages 1973-1986, May.
    3. Williams, Clare & Sandall, Jane & Lewando-Hundt, Gillian & Heyman, Bob & Spencer, Kevin & Grellier, Rachel, 2005. "Women as moral pioneers? Experiences of first trimester antenatal screening," Social Science & Medicine, Elsevier, vol. 61(9), pages 1983-1992, November.
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    Cited by:

    1. Côté-Arsenault, Denise & Denney-Koelsch, Erin, 2016. "“Have no regrets:” Parents' experiences and developmental tasks in pregnancy with a lethal fetal diagnosis," Social Science & Medicine, Elsevier, vol. 154(C), pages 100-109.
    2. Schrank, Beate & Bird, Victoria & Rudnick, Abraham & Slade, Mike, 2012. "Determinants, self-management strategies and interventions for hope in people with mental disorders: Systematic search and narrative review," Social Science & Medicine, Elsevier, vol. 74(4), pages 554-564.

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