IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v67y2008i1p47-56.html
   My bibliography  Save this article

Shifting accountability: A longitudinal qualitative study of diabetes causation accounts

Author

Listed:
  • Lawton, Julia
  • Peel, Elizabeth
  • Parry, Odette
  • Douglas, Margaret

Abstract

We undertook a longitudinal qualitative study involving of 20 patients from Scotland who had type 2 diabetes. We looked at their perceptions and understandings of why they had developed diabetes and how, and why, their causation accounts had changed or remained stable over time. Respondents, all of whom were white, were interviewed four times over a 4-year period (at baseline, 6, 12 and 48 months). Their causation accounts often shifted, sometimes subtly, sometimes radically, over the 4 years. The experiential dimensions of living with, observing, and managing their disease over time were central to understanding the continuities and changes we observed. We also highlight how, through a process of removing, adding and/or de-emphasising explanatory factors, causation accounts could be used as "resources" to justify or enable present treatment choices. We use our work to support critiques of social cognition theories, with their emphasis upon beliefs being antecedent to behaviours. We also provide reflections upon the implications of our findings for qualitative research designs and sampling strategies.

Suggested Citation

  • Lawton, Julia & Peel, Elizabeth & Parry, Odette & Douglas, Margaret, 2008. "Shifting accountability: A longitudinal qualitative study of diabetes causation accounts," Social Science & Medicine, Elsevier, vol. 67(1), pages 47-56, July.
  • Handle: RePEc:eee:socmed:v:67:y:2008:i:1:p:47-56
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277-9536(08)00162-7
    Download Restriction: Full text for ScienceDirect subscribers only
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Blaxter, Mildred, 1983. "The causes of disease : Women talking," Social Science & Medicine, Elsevier, vol. 17(2), pages 59-69, January.
    2. Hunt, Linda M. & Valenzuela, Miguel A. & Pugh, Jacqueline A., 1998. "Porque me tocó a mi ? Mexican American diabetes patients' causal stories and their relationship to treatment behaviors," Social Science & Medicine, Elsevier, vol. 46(8), pages 959-969, April.
    3. Lawton, Julia & Peel, Elizabeth & Parry, Odette & Araoz, Gonzalo & Douglas, Margaret, 2005. "Lay perceptions of type 2 diabetes in Scotland: bringing health services back in," Social Science & Medicine, Elsevier, vol. 60(7), pages 1423-1435, April.
    4. Hunt, Linda M. & Jordan, Brigitte & Irwin, Susan, 1989. "Views of what's wrong: Diagnosis and patients' concepts of illness," Social Science & Medicine, Elsevier, vol. 28(9), pages 945-956, January.
    5. Kelly, Gerard R. & Mamon, Joyce A. & Scott, Jack E., 1987. "Utility of the health belief model in examining medication compliance among psychiatric outpatients," Social Science & Medicine, Elsevier, vol. 25(11), pages 1205-1211, January.
    6. Linn, Margaret W. & Linn, Bernard S. & Stein, Shayna R., 1982. "Beliefs about causes of cancer in cancer patients," Social Science & Medicine, Elsevier, vol. 16(7), pages 835-839, January.
    7. Schoenberg, Nancy E. & Amey, Cheryl H. & Coward, Raymond T., 1998. "Stories of meaning: lay perspectives on the origin and management of noninsulin dependent diabetes mellitus among older women in the United States," Social Science & Medicine, Elsevier, vol. 47(12), pages 2113-2125, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Bennion, Amy E. & Shaw, Rachel L. & Gibson, Jonathan M., 2012. "What do we know about the experience of age related macular degeneration? A systematic review and meta-synthesis of qualitative research," Social Science & Medicine, Elsevier, vol. 75(6), pages 976-985.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Lawton, Julia & Peel, Elizabeth & Parry, Odette & Araoz, Gonzalo & Douglas, Margaret, 2005. "Lay perceptions of type 2 diabetes in Scotland: bringing health services back in," Social Science & Medicine, Elsevier, vol. 60(7), pages 1423-1435, April.
    2. de Alba Garcia, Javier Garcia & Rocha, Ana L. Salcedo & Lopez, Ivette & Baer, Roberta D. & Dressler, William & Weller, Susan C., 2007. ""Diabetes is my companion": Lifestyle and self-management among good and poor control Mexican diabetic patients," Social Science & Medicine, Elsevier, vol. 64(11), pages 2223-2235, June.
    3. Corrigan, Patrick W. & Salzer, Mark S., 2003. "The conflict between random assignment and treatment preference: implications for internal validity," Evaluation and Program Planning, Elsevier, vol. 26(2), pages 109-121, May.
    4. Garthwaite, Kayleigh & Bambra, Clare, 2017. "“How the other half live”: Lay perspectives on health inequalities in an age of austerity," Social Science & Medicine, Elsevier, vol. 187(C), pages 268-275.
    5. Ben Butlin & Keith Laws & Rebecca Read & Matthew D Broome & Shivani Sharma, 2019. "Concepts of mental disorders in the United Kingdom: Similarities and differences between the lay public and psychiatrists," International Journal of Social Psychiatry, , vol. 65(6), pages 507-514, September.
    6. Mendenhall, Emily & Shivashankar, Roopa & Tandon, Nikhil & Ali, Mohammed K. & Venkat Narayan, K.M. & Prabhakaran, Dorairaj, 2012. "Stress and diabetes in socioeconomic context: A qualitative study of urban Indians," Social Science & Medicine, Elsevier, vol. 75(12), pages 2522-2529.
    7. Ajit K. Dalal, 2000. "Living with a Chronic Disease: Healing and Psychological Adjustment in Indian Society," Psychology and Developing Societies, , vol. 12(1), pages 67-81, March.
    8. Kinderman, Peter & Setzu, Erika & Lobban, Fiona & Salmon, Peter, 2006. "Illness beliefs in schizophrenia," Social Science & Medicine, Elsevier, vol. 63(7), pages 1900-1911, October.
    9. Wyke, Sally & Adamson, Joy & Dixon, Diane & Hunt, Kate, 2013. "Consultation and illness behaviour in response to symptoms: A comparison of models from different disciplinary frameworks and suggestions for future research directions," Social Science & Medicine, Elsevier, vol. 86(C), pages 79-87.
    10. Weller, Susan C. & Baer, Roberta D. & Garcia de Alba Garcia, Javier & Salcedo Rocha, Ana L., 2012. "Explanatory models of diabetes in the U.S. and Mexico: The patient–provider gap and cultural competence," Social Science & Medicine, Elsevier, vol. 75(6), pages 1088-1096.
    11. Skea, Zoë C. & Entwistle, Vikki A. & Watt, Ian & Russell, Elizabeth, 2008. "'Avoiding harm to others' considerations in relation to parental measles, mumps and rubella (MMR) vaccination discussions - An analysis of an online chat forum," Social Science & Medicine, Elsevier, vol. 67(9), pages 1382-1390, November.
    12. Ross Barnett, J. & Pearce, Jamie & Howes, Pamela, 2006. "'Help, educate, encourage?': Geographical variations in the provision and utilisation of diabetes education in New Zealand," Social Science & Medicine, Elsevier, vol. 63(5), pages 1328-1343, September.
    13. Kamat, Vinay R., 2006. ""I thought it was only ordinary fever!" cultural knowledge and the micropolitics of therapy seeking for childhood febrile illness in Tanzania," Social Science & Medicine, Elsevier, vol. 62(12), pages 2945-2959, June.
    14. Dixon-Woods, Mary & Ashcroft, Richard E. & Jackson, Clare J. & Tobin, Martin D. & Kivits, Joelle & Burton, Paul R. & Samani, Nilesh J., 2007. "Beyond "misunderstanding": Written information and decisions about taking part in a genetic epidemiology study," Social Science & Medicine, Elsevier, vol. 65(11), pages 2212-2222, December.
    15. Madden, Sue & Sim, Julius, 2006. "Creating meaning in fibromyalgia syndrome," Social Science & Medicine, Elsevier, vol. 63(11), pages 2962-2973, December.
    16. Hodgins, Margaret & Millar, Michelle & M Barry, Margaret, 2006. ""...it's all the same no matter how much fruit or vegetables or fresh air we get": Traveller women's perceptions of illness causation and health inequalities," Social Science & Medicine, Elsevier, vol. 62(8), pages 1978-1990, April.
    17. Gately, Claire & Rogers, Anne & Sanders, Caroline, 2007. "Re-thinking the relationship between long-term condition self-management education and the utilisation of health services," Social Science & Medicine, Elsevier, vol. 65(5), pages 934-945, September.
    18. Kamaldeep Bhui, 1997. "The Language of Compliance: Health Policy and Clinical Practice for the Severely Mentallyill," International Journal of Social Psychiatry, , vol. 43(3), pages 157-163, September.
    19. Neena Kohli & Ajit K. Dalal, 1998. "Culture as a Factor in Causal Understanding of Illness : A Study of Cancer Patients," Psychology and Developing Societies, , vol. 10(2), pages 115-129, September.
    20. Budych, Karolina & Helms, Thomas M. & Schultz, Carsten, 2012. "How do patients with rare diseases experience the medical encounter? Exploring role behavior and its impact on patient–physician interaction," Health Policy, Elsevier, vol. 105(2), pages 154-164.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:67:y:2008:i:1:p:47-56. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.