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The place of death of cancer patients: can qualitative data add to known factors?

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  • Thomas, Carol

Abstract

Research on the distribution of cancer deaths by setting--hospital, hospice, home, other--is longstanding, but has been given fresh impetus in the UK by policy commitments to increase the proportion of deaths occurring in patients' homes. Studies of factors associated with the location of cancer deaths fall into two main categories: geo-epidemiological interrogations of routinely collected death registration data, and prospective and retrospective cohort studies of terminally ill cancer patients. This paper summarises the findings of these studies and considers the place of death factors that are generated in semi-structured interviews with 15 palliative care service providers working in the Morecambe Bay area of north-west England. These qualitative data are found not only to confirm and considerably enrich understanding of known factors, but also to bring new factors into view. New factors can be grouped under the headings: service infrastructure, patient and carer attitudes, and cultures of practice. Such an approach provides useful information for policy makers and practitioners in palliative care.

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  • Thomas, Carol, 2005. "The place of death of cancer patients: can qualitative data add to known factors?," Social Science & Medicine, Elsevier, vol. 60(11), pages 2597-2607, June.
    • Handle: RePEc:eee:socmed:v:60:y:2005:i:11:p:2597-2607
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    References listed on IDEAS

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    1. Higginson, Irene & Priest, Patricia, 1996. "Predictors of family anxiety in the weeks before bereavement," Social Science & Medicine, Elsevier, vol. 43(11), pages 1621-1625, December.
    2. Seale, Clive & Addington-Hall, Julia & McCarthy, Mark, 1997. "Awareness of dying: Prevalence, causes and consequences," Social Science & Medicine, Elsevier, vol. 45(3), pages 477-484, August.
    3. Moinpour, C.M. & Polissar, L., 1989. "Factors affecting place of death of hospice and non-hospice cancer patients," American Journal of Public Health, American Public Health Association, vol. 79(11), pages 1549-1551.
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    Cited by:

    1. Leeson, George W., 2019. "The ageing and de-institutionalisation of death—Evidence from England and Wales," Health Policy, Elsevier, vol. 123(4), pages 435-439.
    2. Zhang, Amy Y. & Zyzanski, Stephen J. & Siminoff, Laura A., 2010. "Differential patient-caregiver opinions of treatment and care for advanced lung cancer patients," Social Science & Medicine, Elsevier, vol. 70(8), pages 1155-1158, April.
    3. Cohen, Joachim & Bilsen, Johan & Hooft, Peter & Deboosere, Patrick & Wal, Gerrit van der & Deliens, Luc, 2006. "Dying at home or in an institution: Using death certificates to explore the factors associated with place of death," Health Policy, Elsevier, vol. 78(2-3), pages 319-329, October.
    4. Wilson, Donna M. & Truman, Corrine D. & Thomas, Roger & Fainsinger, Robin & Kovacs-Burns, Kathy & Froggatt, Katherine & Justice, Christopher, 2009. "The rapidly changing location of death in Canada, 1994-2004," Social Science & Medicine, Elsevier, vol. 68(10), pages 1752-1758, May.
    5. Sudbury-Riley, Lynn & Hunter-Jones, Philippa & Al-Abdin, Ahmed & Lewin, Daniel & Spence, Rachel, 2020. "Conceptualizing experiential luxury in palliative care: Pathographies of liminal space, cathedral, and community," Journal of Business Research, Elsevier, vol. 116(C), pages 446-457.

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