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From symptom recognition to diagnosis: children with autism in urban India

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  • Daley, Tamara C.

Abstract

The period of time between initial recognition of a symptom and initial diagnosis warrants examination because it can serve as a window into broader cultural factors and allow for more immediate treatment. Research on this process among parents of autistic children to date has been useful, but has been limited to families in Western countries, whereas autism occurs all over the world. The current study provides data on the process of initial symptom recognition, help-seeking, and initial diagnosis of a pervasive developmental disorder among 95 families of autistic children in India. The findings suggest that the specific symptoms that parents initially recognize may be associated with the speed with which they receive a diagnosis, and that the saliency of symptoms may be culturally shaped. Environmental, cultural, and socioeconomic factors may also have an impact on whether a parent receives a diagnosis. Implications for professional awareness and increased accuracy of diagnosis are also suggested.

Suggested Citation

  • Daley, Tamara C., 2004. "From symptom recognition to diagnosis: children with autism in urban India," Social Science & Medicine, Elsevier, vol. 58(7), pages 1323-1335, April.
    • Handle: RePEc:eee:socmed:v:58:y:2004:i:7:p:1323-1335
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    Cited by:

    1. Liliana Tapia Guillen & Marco A Solis Bravo & Lilia Albores Gallo & Yassel Flores Rodriguez & Ofelia Roldan Ceballos & Romina Erika Aguerre Estevez & Jimena Martin Salas, 2019. "Autism Spectrum Disorders in an Upper-Middle Income Country," Global Journal of Intellectual & Developmental Disabilities, Juniper Publishers Inc., vol. 6(2), pages 36-42, March.
    2. Nilika Mehrotra & Shubhangi Vaidya, 2008. "Exploring Constructs of Intellectual Disability and Personhood in Haryana and Delhi," Indian Journal of Gender Studies, Centre for Women's Development Studies, vol. 15(2), pages 317-340, May.
    3. Rasmussen, Pernille Skovbo & Pedersen, Inge Kryger & Pagsberg, Anne Katrine, 2020. "Biographical disruption or cohesion?: How parents deal with their child's autism diagnosis," Social Science & Medicine, Elsevier, vol. 244(C).
    4. Shaked, Michal, 2005. "The social trajectory of illness: Autism in the ultraorthodox community in Israel," Social Science & Medicine, Elsevier, vol. 61(10), pages 2190-2200, November.
    5. Ha, Vu Song & Whittaker, Andrea & Whittaker, Maxine & Rodger, Sylvia, 2014. "Living with autism spectrum disorder in Hanoi, Vietnam," Social Science & Medicine, Elsevier, vol. 120(C), pages 278-285.
    6. Daley, Tamara C. & Weisner, Thomas & Singhal, Nidhi, 2014. "Adults with autism in India: A mixed-method approach to make meaning of daily routines," Social Science & Medicine, Elsevier, vol. 116(C), pages 142-149.
    7. Sayyed Ali Samadi, 2020. "Parental Beliefs and Feelings about Autism Spectrum Disorder in Iran," IJERPH, MDPI, vol. 17(3), pages 1-13, January.

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