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Living with autism spectrum disorder in Hanoi, Vietnam

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  • Ha, Vu Song
  • Whittaker, Andrea
  • Whittaker, Maxine
  • Rodger, Sylvia

Abstract

There is limited understanding of Autism spectrum disorder (ASD) in Vietnam. This ethnographic study aimed to explore how ASD is represented and managed in the cultural, social and economic contexts of Vietnam, and describe the experiences of families with children with ASD in Hanoi, Vietnam. This study was conducted from 2011 to 2012 in Hanoi and employed a range of methods, including participant observation, in-depth interviews with 27 parents of children with ASD and 17 key informants, and online survey. This study found that within Hanoi, Vietnam, ASD has been culturally and socially constructed as a ‘disease’, ‘karmic demerit’ and ‘family problem’ rather than a life-long developmental disorder that needs support from government. Children with ASD and their families experience various forms of stigma and discrimination. There are limitations in assessment and diagnosis of ASD. Parents of children with ASD have little access to services for their children, and the limited political and economic supports exacerbate their difficulties. This study highlights some of the ways in which the understandings and management of ASD vary cross culturally. It also suggests further attention is required to the provision of appropriate public education, low cost interventions and support for family advocacy groups.

Suggested Citation

  • Ha, Vu Song & Whittaker, Andrea & Whittaker, Maxine & Rodger, Sylvia, 2014. "Living with autism spectrum disorder in Hanoi, Vietnam," Social Science & Medicine, Elsevier, vol. 120(C), pages 278-285.
    • Handle: RePEc:eee:socmed:v:120:y:2014:i:c:p:278-285
    DOI: 10.1016/j.socscimed.2014.09.038
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    References listed on IDEAS

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    1. Daley, Tamara C., 2004. "From symptom recognition to diagnosis: children with autism in urban India," Social Science & Medicine, Elsevier, vol. 58(7), pages 1323-1335, April.
    2. World Bank Group, 2014. "Vietnam," World Bank Publications - Books, The World Bank Group, number 21950.
    3. Sun, Xiang & Allison, Carrie & Auyeung, Bonnie & Matthews, Fiona E. & Baron-Cohen, Simon & Brayne, Carol, 2013. "Service provision for autism in mainland China: Preliminary mapping of service pathways," Social Science & Medicine, Elsevier, vol. 98(C), pages 87-94.
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    Cited by:

    1. Indra Yohanes Kiling & Clemence Due & Dominggus Elcid Li & Deborah Turnbull, 2018. "Interventions Supporting Development of Young Children With Disabilities at Environmental Risk in Indonesia: A Scoping Review," SAGE Open, , vol. 8(1), pages 21582440187, January.
    2. Do, Trang Thu & Whittaker, Andrea, 2020. "Contamination, suffering and womanhood: Lay explanations of breast cancer in Central Vietnam," Social Science & Medicine, Elsevier, vol. 266(C).
    3. Michael Palmer & Cuong Nguyen & Sophie Mitra & Daniel Mont & Nora Groce, 2016. "The long-term impact of war on health," HiCN Working Papers 216, Households in Conflict Network.
    4. Nguyen, Thi Vinh & King, Julie & Edwards, Niki & Dunne, Michael P., 2021. "“Under great anxiety”: Pregnancy experiences of Vietnamese women with physical disabilities seen through an intersectional lens," Social Science & Medicine, Elsevier, vol. 284(C).
    5. Duong, Cong Doanh, 2023. "“What goes around comes around†: Activating sustainable consumption with curvilinear effects of karma determinants," Journal of Retailing and Consumer Services, Elsevier, vol. 73(C).
    6. Michael Palmer & Nora Groce & Daniel Mont & Oanh Hong Nguyen & Sophie Mitra, 2015. "The Economic Lives of People with Disabilities in Vietnam," PLOS ONE, Public Library of Science, vol. 10(7), pages 1-16, July.

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