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Medication, chronic illness and identity: The perspective of people with asthma

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  • Adams, Stephanie
  • Pill, Roisin
  • Jones, Alan

Abstract

The issue of compliance with prescribed medication has traditionally been dominated by the perspective of the health professional although increasingly sociologists, using qualitative methods, have begun to present the patients' point of view. However, little has been published on asthma, despite the numbers of people suffering from this chronic condition and the amount of medication regularly prescribed. This paper focuses on the perspective of a sample of S. Wales (U.K.) asthma patients who have all been prescribed prophylactic medication in the last 12 months and explores their attitudes to medication in the context of their everyday lives, using inductive qualitative research methods. Two main groups were identified: the deniers and the accepters. They differed fundamentally in their readiness to accept the identity of asthma sufferer which, in turn, was associated with very different beliefs about the nature of their problem and the meaning of the medication prescribed for it. There was also marked differences in their strategies of self-presentation and disclosure and their pattern of medication use, particularly for prophylactic medication. A third group, the pragmatists, were also identified as a possible sub-group of the accepter category who are less open within self-presentation and less consistent in their beliefs about asthma but do not reject the label entirely. Identity work, i.e. the way the respondents interpreted the social identity of asthma sufferers and managed to reconcile it with other social identities, is proposed as the most useful way of understanding the observed variation in the way people diagnosed as asthmatic conceptualise and use their medication.

Suggested Citation

  • Adams, Stephanie & Pill, Roisin & Jones, Alan, 1997. "Medication, chronic illness and identity: The perspective of people with asthma," Social Science & Medicine, Elsevier, vol. 45(2), pages 189-201, July.
  • Handle: RePEc:eee:socmed:v:45:y:1997:i:2:p:189-201
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    Cited by:

    1. Andrew Shepherd & Caroline Sanders & Michael Doyle & Jenny Shaw, 2016. "Personal recovery in personality disorder: Systematic review and meta-synthesis of qualitative methods studies," International Journal of Social Psychiatry, , vol. 62(1), pages 41-50, February.
    2. Gibson, Grant, 2016. "‘Signposts on the journey’; medication adherence and the lived body in men with Parkinson's disease," Social Science & Medicine, Elsevier, vol. 152(C), pages 27-34.
    3. Munir, F. & Leka, S. & Griffiths, A., 2005. "Dealing with self-management of chronic illness at work: predictors for self-disclosure," Social Science & Medicine, Elsevier, vol. 60(6), pages 1397-1407, March.
    4. Haw, Jennie & Cunningham, Shannon & O'Doherty, Kieran C., 2018. "Epistemic tensions between people living with asthma and healthcare professionals in clinical encounters," Social Science & Medicine, Elsevier, vol. 208(C), pages 34-40.
    5. Jones, Ian Rees & Ahmed, Nilufar & Kelly, Moira & Bothamley, Graham & Rajakulasingam, Raja & Victor, Christina & O'Malley, Anne & Griffiths, Chris, 2008. "With an attack I associate it more with going into hospital: Understandings of asthma and psychosocial stressors; are they related to use of services?," Social Science & Medicine, Elsevier, vol. 66(3), pages 765-775, February.
    6. Joo, Won-tak, 2023. "Educational gradient in social network changes at disease diagnosis," Social Science & Medicine, Elsevier, vol. 317(C).
    7. Scott, Sydney E. & Landy, Justin F., 2023. "“Good people don’t need medication”: How moral character beliefs affect medical decision making," Organizational Behavior and Human Decision Processes, Elsevier, vol. 175(C).
    8. Aujoulat, Isabelle & Marcolongo, Renzo & Bonadiman, Leopoldo & Deccache, Alain, 2008. "Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control," Social Science & Medicine, Elsevier, vol. 66(5), pages 1228-1239, March.
    9. Parizot, Isabelle & Chauvin, Pierre & Paugam, Serge, 2005. "The moral career of poor patients in free clinics," Social Science & Medicine, Elsevier, vol. 61(6), pages 1369-1380, September.
    10. Madden, Sue & Sim, Julius, 2006. "Creating meaning in fibromyalgia syndrome," Social Science & Medicine, Elsevier, vol. 63(11), pages 2962-2973, December.
    11. Stone, Meredith & Kokanovic, Renata, 2016. "“Halfway towards recovery”: Rehabilitating the relational self in narratives of postnatal depression," Social Science & Medicine, Elsevier, vol. 163(C), pages 98-106.
    12. Beard, Renée L. & Fox, Patrick J., 2008. "Resisting social disenfranchisement: Negotiating collective identities and everyday life with memory loss," Social Science & Medicine, Elsevier, vol. 66(7), pages 1509-1520, April.

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