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A critical analysis of trans-visibility through online medical crowdfunding

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  • Wardell, Susan
  • Withey-Rila, Cassie

Abstract

In contexts where many people face barriers to accessing gender-affirming care through public systems, some turn to online crowdfunding to fundraise for private care pathways. Crowdfunding platforms invite people to share personal information, stories, and photos publicly, in order to elicit donations. In this article we draw on empirical data from a multimethodological three-year study of medical crowdfunding in Aotearoa New Zealand, with a focus on people crowdfunding for medical transition services. We apply a lens of ‘visibility’ to analysis of focus groups, interviews, case studies, and campaign pages, presenting findings on who was present and absent (with a focus on binary gender, and whiteness), and who was the assumed or expected audience (with a focus on cis publics). We describe how campaigns were defined by efforts to make trans bodies legible, and campaign requests competitive, through reference to narrow and medicalised frames of dysphoria, suffering, and transformation via medical intervention. We contribute to more comparative work in the literature on crowdfunding by highlighting how these globalised digital technologies are situated in the particular (demographic, cultural, and structural) contexts of Aotearoa New Zealand. We call attention to crowdfunding as a relational practice, in which the public marketisation of the self can have both individual consequences related to privacy and outing, and social consequences, in the reinforcing of trans-normativities. Overall we argue that although crowdfunding represents an adaptive strategy for trans people trying meet their own needs, it ultimately contributes to a type of trans-visibility which is both risky and limiting.

Suggested Citation

  • Wardell, Susan & Withey-Rila, Cassie, 2024. "A critical analysis of trans-visibility through online medical crowdfunding," Social Science & Medicine, Elsevier, vol. 345(C).
  • Handle: RePEc:eee:socmed:v:345:y:2024:i:c:s0277953624001266
    DOI: 10.1016/j.socscimed.2024.116682
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    References listed on IDEAS

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    1. Berliner, Lauren S. & Kenworthy, Nora J., 2017. "Producing a worthy illness: Personal crowdfunding amidst financial crisis," Social Science & Medicine, Elsevier, vol. 187(C), pages 233-242.
    2. Blake Murdoch & Alessandro R Marcon & Daniel Downie & Timothy Caulfield, 2019. "Media portrayal of illness-related medical crowdfunding: A content analysis of newspaper articles in the United States and Canada," PLOS ONE, Public Library of Science, vol. 14(4), pages 1-12, April.
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