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Racial and gender disparities among highly successful medical crowdfunding campaigns

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  • Davis, Aaron Renee
  • Elbers, Shauna K.
  • Kenworthy, Nora

Abstract

There has been growing recognition of the popularity of medical crowdfunding and research documenting how crowdfunding arises from, and contributes to, social and health inequities. While many researchers have surmised that racism could well play a role in medical crowdfunding campaign outcomes, research on these dynamics has been limited. No research to date has examined these dynamics among the most successful medical crowdfunding campaigns, focusing instead on average users’ experiences or specific patient subpopulations. This paper analyzes key characteristics and demographics of the 827 most successful medical crowdfunding campaigns captured at a point in time in 2020 on the popular site GoFundMe, creating the first demographic archetype of “viral” or highly successful campaigns. We hypothesized that this sample would skew towards whiter, younger populations, more heavily represent men, and reflect critical illnesses and accidents affecting these populations, in addition to having visually appealing, well-crafted storytelling. Analysis supported these hypotheses, showing significant levels of racial and gender disparities among campaigners. While white men had the greatest representation, Black and Asian users, and black women in particular, were highly underrepresented. Like other studies, we find evidence that racial and gender disparities persist in terms of campaign outcomes as well. Alongside this quantitative analysis, a targeted discourse analysis revealed campaign narratives and comments reinforced racist and sexist tropes of selective deservingness. These findings add to growing calls for more health research into the ways that social media technologies shape health inequities for historically marginalized and disenfranchised populations. In particular, we underscore how successful crowdfunding campaigns, as a both a means of raising funds for health and a broader site of public engagement, may deepen and normalize gendered and racialized inequities. In this way, crowdfunding can be seen as a significant technological amplifier of the fundamental social causes of health disparities.

Suggested Citation

  • Davis, Aaron Renee & Elbers, Shauna K. & Kenworthy, Nora, 2023. "Racial and gender disparities among highly successful medical crowdfunding campaigns," Social Science & Medicine, Elsevier, vol. 324(C).
    • Handle: RePEc:eee:socmed:v:324:y:2023:i:c:s0277953623002095
    DOI: 10.1016/j.socscimed.2023.115852
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    References listed on IDEAS

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    1. Peter Younkin & Venkat Kuppuswamy, 2018. "The Colorblind Crowd? Founder Race and Performance in Crowdfunding," Management Science, INFORMS, vol. 64(7), pages 3269-3287, July.
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    5. Nora Kenworthy & Zhihang Dong & Anne Montgomery & Emily Fuller & Lauren Berliner, 2020. "A cross-sectional study of social inequities in medical crowdfunding campaigns in the United States," PLOS ONE, Public Library of Science, vol. 15(3), pages 1-23, March.
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    Cited by:

    1. Moysidou, Krystallia & Cohen Chen, Smadar, 2023. "Inducing collective action intentions for healthcare reform through medical crowdfunding framing," Social Science & Medicine, Elsevier, vol. 333(C).

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