IDEAS home Printed from https://ideas.repec.org/a/eee/socmed/v320y2023ics0277953623000242.html
   My bibliography  Save this article

Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review

Author

Listed:
  • Mullard, Jordan C.R.
  • Kawalek, Jessica
  • Parkin, Amy
  • Rayner, Clare
  • Mir, Ghazala
  • Sivan, Manoj
  • Greenhalgh, Trisha

Abstract

Since the first wave of COVID-19 in March 2020 the number of people living with post-COVID syndrome has risen rapidly at global pace, however, questions still remain as to whether there is a hidden cohort of sufferers not accessing mainstream clinics. This group are likely to be constituted by already marginalised people at the sharp end of existing health inequalities and not accessing formal clinics. The challenge of supporting such patients includes the question of how best to organise and facilitate different forms of support. As such, we aim to examine whether peer support is a potential option for hidden or hardly reached populations of long COVID sufferers with a specific focus on the UK, though not exclusively. Through a systematic hermeneutic literature review of peer support in other conditions (57 papers), we evaluate the global potential of peer support for the ongoing needs of people living with long COVID. Through our analysis, we highlight three key peer support perspectives in healthcare reflecting particular theoretical perspectives, goals, and understandings of what is ‘good health’, we call these: biomedical (disease control/management), relational (intersubjective mutual support) and socio-political (advocacy, campaigning & social context). Additionally, we identify three broad models for delivering peer support: service-led, community-based and social media. Attention to power relations, social and cultural capital, and a co-design approach are key when developing peer support services for disadvantaged and underserved groups. Models from other long-term conditions suggest that peer support for long COVID can and should go beyond biomedical goals and harness the power of relational support and collective advocacy. This may be particularly important when seeking to reduce health inequalities and improve access for a potentially hidden cohort of sufferers.

Suggested Citation

  • Mullard, Jordan C.R. & Kawalek, Jessica & Parkin, Amy & Rayner, Clare & Mir, Ghazala & Sivan, Manoj & Greenhalgh, Trisha, 2023. "Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review," Social Science & Medicine, Elsevier, vol. 320(C).
    • Handle: RePEc:eee:socmed:v:320:y:2023:i:c:s0277953623000242
    DOI: 10.1016/j.socscimed.2023.115669
    as

    Download full text from publisher

    File URL: http://www.sciencedirect.com/science/article/pii/S0277953623000242
    Download Restriction: Full text for ScienceDirect subscribers only
    File URL: https://libkey.io/10.1016/j.socscimed.2023.115669?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    As the access to this document is restricted, you may want to search for a different version of it.

    References listed on IDEAS

    as
    1. Erangey, James & Marvin, Connor & Littman, Danielle Maude & Mollica, Meredith & Bender, Kimberly & Lucas, Tom & Milligan, Tara, 2020. "How peer support specialists uniquely initiate and build connection with young people experiencing homelessness," Children and Youth Services Review, Elsevier, vol. 119(C).
    2. Poteat, Tonia & German, Danielle & Kerrigan, Deanna, 2013. "Managing uncertainty: A grounded theory of stigma in transgender health care encounters," Social Science & Medicine, Elsevier, vol. 84(C), pages 22-29.
    3. Callard, Felicity & Perego, Elisa, 2021. "How and why patients made Long Covid," Social Science & Medicine, Elsevier, vol. 268(C).
    4. Rigmor C Berg & Samantha Page & Anita Øgård-Repål, 2021. "The effectiveness of peer-support for people living with HIV: A systematic review and meta-analysis," PLOS ONE, Public Library of Science, vol. 16(6), pages 1-24, June.
    5. Subramani, Supriya, 2018. "The moral significance of capturing micro-inequities in hospital settings," Social Science & Medicine, Elsevier, vol. 209(C), pages 136-144.
    6. Murray, Susan F. & Pearson, Stephen C., 2006. "Maternity referral systems in developing countries: Current knowledge and future research needs," Social Science & Medicine, Elsevier, vol. 62(9), pages 2205-2215, May.
    7. Goddard, Maria & Smith, Peter, 2001. "Equity of access to health care services: : Theory and evidence from the UK," Social Science & Medicine, Elsevier, vol. 53(9), pages 1149-1162, November.
    8. Sokol, R. & Fisher, E., 2016. "Peer Support for the Hardly Reached: A Systematic Review," American Journal of Public Health, American Public Health Association, vol. 106(7), pages 1-8.
    9. Mclean, Carl & Campbell, Catherine & Cornish, Flora, 2003. "African-Caribbean interactions with mental health services in the UK: experiences and expectations of exclusion as (re)productive of health inequalities," Social Science & Medicine, Elsevier, vol. 56(3), pages 657-669, February.
    10. Tricia K Gatlin & Reimund Serafica & Michael Johnson, 2017. "Systematic review of peer education intervention programmes among individuals with type 2 diabetes," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4212-4222, December.
    11. Dovidio, John F. & Penner, Louis A. & Albrecht, Terrance L. & Norton, Wynne E. & Gaertner, Samuel L. & Shelton, J. Nicole, 2008. "Disparities and distrust: The implications of psychological processes for understanding racial disparities in health and health care," Social Science & Medicine, Elsevier, vol. 67(3), pages 478-486, August.
    12. Bloom, Gerald & Standing, Hilary & Lloyd, Robert, 2008. "Markets, information asymmetry and health care: Towards new social contracts," Social Science & Medicine, Elsevier, vol. 66(10), pages 2076-2087, May.
    13. Sokol, R. & Fisher, E., 2016. "Peer support for the hardly reached: A systematic review," American Journal of Public Health, American Public Health Association, vol. 106(7), pages 1-8.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Figueiredo, Bernardo & Sheahan, Jacob & Luo, Shiqi & Bird, Stephen & Wong Lit Wan, Dawn & Xenos, Sophia & Itsiopoulos, Catherine & Jessup, Rebecca & Zheng, Zhen, 2024. "Journey mapping long COVID: Agency and social support for long-hauling," Social Science & Medicine, Elsevier, vol. 340(C).
    2. Bojovic, Neva & Geiger, Susi, 2023. "Epistemic and institutional recognition work in changing conditions of social visibility: Anosmia's journey from the shadows to the spotlight," Social Science & Medicine, Elsevier, vol. 338(C).

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. Anna Price & Siân de Bell & Naomi Shaw & Alison Bethel & Rob Anderson & Jo Thompson Coon, 2022. "What is the volume, diversity and nature of recent, robust evidence for the use of peer support in health and social care? An evidence and gap map," Campbell Systematic Reviews, John Wiley & Sons, vol. 18(3), September.
    2. Kia, Hannah & MacKinnon, Kinnon Ross & Abramovich, Alex & Bonato, Sarah, 2021. "Peer support as a protective factor against suicide in trans populations: A scoping review," Social Science & Medicine, Elsevier, vol. 279(C).
    3. Laura K. Bech & Camilla Borch Jacobsen & Anne Sophie Mathiesen & Thordis Thomsen, 2019. "Preferring to manage by myself: A qualitative study of the perspectives of hardly reached people with type 2 diabetes on social support for diabetes management," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(9-10), pages 1889-1898, May.
    4. Tricia K Gatlin & Reimund Serafica & Michael Johnson, 2017. "Systematic review of peer education intervention programmes among individuals with type 2 diabetes," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(23-24), pages 4212-4222, December.
    5. Reham Shalaby & Pamela Spurvey & Michelle Knox & Rebecca Rathwell & Wesley Vuong & Shireen Surood & Liana Urichuk & Mark Snaterse & Andrew J. Greenshaw & Xin-Min Li & Vincent I. O. Agyapong, 2022. "Clinical Outcomes in Routine Evaluation Measures for Patients Discharged from Acute Psychiatric Care: Four-Arm Peer and Text Messaging Support Controlled Observational Study," IJERPH, MDPI, vol. 19(7), pages 1-14, March.
    6. Aliza Moledina & Olivia Magwood & Eric Agbata & Jui‐Hsia Hung & Ammar Saad & Kednapa Thavorn & Ginetta Salvalaggio & Gary Bloch & David Ponka & Tim Aubry & Claire Kendall & Kevin Pottie, 2021. "A comprehensive review of prioritised interventions to improve the health and wellbeing of persons with lived experience of homelessness," Campbell Systematic Reviews, John Wiley & Sons, vol. 17(2), June.
    7. Feldman, Matthew B. & Tran, Trang T. & Boucher, Lisa M. & Abdelqader, Faisal & Raker, Amanda R. & Hile, Stephen J., 2023. "A process and impact evaluation of a peer-led HIV self-management program," Evaluation and Program Planning, Elsevier, vol. 96(C).
    8. Wallace, Carolyn & Farmer, Jane & McCosker, Anthony, 2019. "Boundary spanning practices of community connectors for engaging ‘hardly reached’ people in health services," Social Science & Medicine, Elsevier, vol. 232(C), pages 366-373.
    9. Bourke, Lisa & Mitchell, Olivia & Mohamed Shaburdin, Zubaidah & Malatzky, Christina & Anam, Mujibul & Farmer, Jane, 2021. "Building readiness for inclusive practice in mainstream health services: A pre-inclusion framework to deconstruct exclusion," Social Science & Medicine, Elsevier, vol. 289(C).
    10. Eric French & Elaine Kelly & Richard Cookson & Carol Propper & Miqdad Asaria & Rosalind Raine, 2016. "Socio‐Economic Inequalities in Health Care in England," Fiscal Studies, Institute for Fiscal Studies, vol. 37, pages 371-403, September.
    11. Fleurbaey, Marc & Schokkaert, Erik, 2009. "Unfair inequalities in health and health care," Journal of Health Economics, Elsevier, vol. 28(1), pages 73-90, January.
    12. Mengna Luan & Wenjing Shi & Zhigang Tao & Hongjie Yuan, 2023. "When patients have better insurance coverage in China: Provider incentives, costs, and quality of care," Economics of Transition and Institutional Change, John Wiley & Sons, vol. 31(4), pages 1073-1106, October.
    13. Marcela Arrivillaga, 2021. "Assesing Health Services in Colombia: Development of a Conceptual Framework and Measurement tools based on primary data," SAGE Open, , vol. 11(2), pages 21582440211, May.
    14. Jacqueline A. Krysa & Sidney Horlick & Kiran Pohar Manhas & Katharina Kovacs Burns & Mikayla Buell & Maria J. Santana & Kristine Russell & Elizabeth Papathanassoglou & Chester Ho, 2023. "Accessing Care Services for Long COVID Sufferers in Alberta, Canada: A Random, Cross-Sectional Survey Study," IJERPH, MDPI, vol. 20(15), pages 1-14, July.
    15. Coast, Joanna, 2018. "A history that goes hand in hand: Reflections on the development of health economics and the role played by Social Science & Medicine, 1967–2017," Social Science & Medicine, Elsevier, vol. 196(C), pages 227-232.
    16. Yumei Zhu & August Österle, 2019. "China's policy experimentation on long‐term care insurance: Implications for access," International Journal of Health Planning and Management, Wiley Blackwell, vol. 34(4), pages 1661-1674, October.
    17. Andrew McNee, 2012. "Illuminating the local: can non-formal institutions be complementary to health system development in Papua New Guinea?," Development Policy Centre Discussion Papers 1215, Development Policy Centre, Crawford School of Public Policy, The Australian National University.
    18. Linander, Ida & Alm, Erika & Hammarström, Anne & Harryson, Lisa, 2017. "Negotiating the (bio)medical gaze – Experiences of trans-specific healthcare in Sweden," Social Science & Medicine, Elsevier, vol. 174(C), pages 9-16.
    19. Adam Oliver, 2005. "The English National Health Service: 1979‐2005," Health Economics, John Wiley & Sons, Ltd., vol. 14(S1), pages 75-99, September.
    20. Laia Palència & Albert Espelt & Maica Rodríguez-Sanz & Katia B. Rocha & M. Isabel Pasarín & Carme Borrell, 2013. "Trends in social class inequalities in the use of health care services within the Spanish National Health System, 1993–2006," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 14(2), pages 211-219, April.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:eee:socmed:v:320:y:2023:i:c:s0277953623000242. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Catherine Liu (email available below). General contact details of provider: http://www.elsevier.com/wps/find/journaldescription.cws_home/315/description#description .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.