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Nothing about us without us: Community-based participatory research to improve HIV care for mobile patients in Kenya and Uganda

Author

Listed:
  • Maeri, Irene
  • Eyul, Patrick
  • Getahun, Monica
  • Hatchett, Khalela
  • Owino, Lawrence
  • Akatukwasa, Cecilia
  • Itiakorit, Harriet
  • Gutin, Sarah A.
  • Johnson-Peretz, Jason
  • Ssali, Sarah
  • Cohen, Craig R.
  • Bukusi, Elizabeth A.
  • Kamya, Moses R.
  • Charlebois, Edwin D.
  • Camlin, Carol S.

Abstract

Population mobility is prevalent and complex in sub-Saharan Africa, and can disrupt HIV care and fuel onward transmission. While differentiated care models show promise for meeting the needs of mobile populations by addressing care cascade gaps, the voices of mobile populations need to be included when designing care delivery models. We assessed the unmet needs of mobile populations and engaged mobile stakeholders in the design and implementation of service delivery to improve care outcomes for mobile people living with HIV (PLHIV).

Suggested Citation

  • Maeri, Irene & Eyul, Patrick & Getahun, Monica & Hatchett, Khalela & Owino, Lawrence & Akatukwasa, Cecilia & Itiakorit, Harriet & Gutin, Sarah A. & Johnson-Peretz, Jason & Ssali, Sarah & Cohen, Craig , 2023. "Nothing about us without us: Community-based participatory research to improve HIV care for mobile patients in Kenya and Uganda," Social Science & Medicine, Elsevier, vol. 318(C).
    • Handle: RePEc:eee:socmed:v:318:y:2023:i:c:s0277953622007778
    DOI: 10.1016/j.socscimed.2022.115471
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    References listed on IDEAS

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    1. Anna Kuehne & Carmen Koschollek & Claudia Santos-Hövener & Adama Thorlie & Johanna Müllerschön & Christina Mputu Tshibadi & Pierre Mayamba & Helene Batemona-Abeke & Stephen Amoah & Virginia Wangare Gr, 2018. "Impact of HIV knowledge and stigma on the uptake of HIV testing – Results from a community-based participatory research survey among migrants from sub-Saharan Africa in Germany," PLOS ONE, Public Library of Science, vol. 13(4), pages 1-19, April.
    2. Carol S Camlin & Victoria Hosegood & Marie-Louise Newell & Nuala McGrath & Till Bärnighausen & Rachel C Snow, 2010. "Gender, Migration and HIV in Rural KwaZulu-Natal, South Africa," PLOS ONE, Public Library of Science, vol. 5(7), pages 1-10, July.
    3. Nancy L. Winterbauer & Betty Bekemeier & Lisa VanRaemdonck & Anna G. Hoover, 2016. "Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks," SAGE Open, , vol. 6(4), pages 21582440166, November.
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