The social value of genomic sequencing for disadvantaged families facing rare disease
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DOI: 10.1016/j.socscimed.2022.115465
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- Dimond, Rebecca & Bartlett, Andrew & Lewis, Jamie, 2015. "What binds biosociality? The collective effervescence of the parent-led conference," Social Science & Medicine, Elsevier, vol. 126(C), pages 1-8.
- Dubbin, Leslie A. & Chang, Jamie Suki & Shim, Janet K., 2013. "Cultural health capital and the interactional dynamics of patient-centered care," Social Science & Medicine, Elsevier, vol. 93(C), pages 113-120.
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Keywords
Clinical genomic sequencing; Pediatric diagnosis; Underserved populations; Value-making;All these keywords.
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