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‘I'm not interested in research; i'm interested in services': How to better health and social services for transgender women living with and affected by HIV

Author

Listed:
  • Everhart, Avery R.
  • Boska, Hayden
  • Sinai-Glazer, Hagit
  • Wilson-Yang, Jia Qing
  • Burke, Nora Butler
  • LeBlanc, Gabrielle
  • Persad, Yasmeen
  • Ortigoza, Evana
  • Scheim, Ayden I.
  • Marshall, Zack

Abstract

This paper presents results of a research priority setting process focused on trans women living with and affected by HIV across Canada. It features data from semi-structured interviews and focus groups conducted with a diverse group of 76 trans women in five urban centers across the country on how they have navigated health and social service programming within their geographic context. The results focus on the structure and types of services. Respondents offered simple, yet creative ways to address barriers to vital services based on their individual and collective experiences. Notably, participants stressed the need for 1) trans-friendly and trans-specific services, 2) integrated health services, and aid in navigating complex, overlapping systems, and 3) comprehensive community-based services. They also suggest employing trans women as care coordinators or case managers in order to foster more trans-friendly environments and empower community members. We identify concrete ways to improve health and social services at the level of service delivery and program design, as well as recommendations for future participatory research. We close with an interrogation of trans people, and trans women living with and affected by HIV in particular, as ‘hard to reach’ populations.

Suggested Citation

  • Everhart, Avery R. & Boska, Hayden & Sinai-Glazer, Hagit & Wilson-Yang, Jia Qing & Burke, Nora Butler & LeBlanc, Gabrielle & Persad, Yasmeen & Ortigoza, Evana & Scheim, Ayden I. & Marshall, Zack, 2022. "‘I'm not interested in research; i'm interested in services': How to better health and social services for transgender women living with and affected by HIV," Social Science & Medicine, Elsevier, vol. 292(C).
  • Handle: RePEc:eee:socmed:v:292:y:2022:i:c:s0277953621009424
    DOI: 10.1016/j.socscimed.2021.114610
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    References listed on IDEAS

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    1. Pamela W Klein & Demetrios Psihopaidas & Jessica Xavier & Stacy M Cohen, 2020. "HIV-related outcome disparities between transgender women living with HIV and cisgender people living with HIV served by the Health Resources and Services Administration’s Ryan White HIV/AIDS Program:," PLOS Medicine, Public Library of Science, vol. 17(5), pages 1-16, May.
    2. Vaitses Fontanari, Anna Martha & Zanella, Gabriel Ibarra & Feijó, Marina & Churchill, Siobhan & Rodrigues Lobato, Maria Inês & Costa, Angelo Brandelli, 2019. "HIV-related care for transgender people: A systematic review of studies from around the world," Social Science & Medicine, Elsevier, vol. 230(C), pages 280-294.
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    Cited by:

    1. Arjee Restar & E. J. Dusic & Henri Garrison-Desany & Elle Lett & Avery Everhart & Kellan E. Baker & Ayden I. Scheim & S. Wilson Beckham & Sari Reisner & Adam J. Rose & Matthew J. Mimiaga & Asa Radix &, 2022. "Gender affirming hormone therapy dosing behaviors among transgender and nonbinary adults," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-11, December.

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