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Writing to template: Researchers’ negotiation of procedural research ethics

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  • Chiumento, Anna
  • Rahman, Atif
  • Frith, Lucy

Abstract

This qualitative study examines researchers' views of research ethics in everyday global mental health research practice. We present data from a multi-site study conducted in 2014-15 involving 35 individual in-depth interviews that explore researchers' perceptions of procedural ethics in research conducted in South Asia. We examine how researchers' negotiate ethical procedures, and consider the impact this has on ethical practice. This study foregrounds researchers' pivotal role in procedural research ethics: they produce ethical documents including research protocols and informed consent forms; engage in ethical review; and apply ethical documents to research practice. We apply the analytical framework of boundary objects to show the active work that ethical documents simultaneously enable and inhibit as researchers and ethical review boards apply these as templates for interaction. This analysis shows how the documents required by procedural ethics processes facilitate representations of research that are generalised, standardised, and abstracted from the situated context in which they are applied. Researchers' engagement with these standardised forms cannot prepare them for potential ethical issues in research practice. These templates therefore act as ideal constructions of what research ethics could be, documenting moral intent that researchers draw upon to translate into practice.

Suggested Citation

  • Chiumento, Anna & Rahman, Atif & Frith, Lucy, 2020. "Writing to template: Researchers’ negotiation of procedural research ethics," Social Science & Medicine, Elsevier, vol. 255(C).
  • Handle: RePEc:eee:socmed:v:255:y:2020:i:c:s0277953620301994
    DOI: 10.1016/j.socscimed.2020.112980
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    References listed on IDEAS

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    1. Miller, Tina & Boulton, Mary, 2007. "Changing constructions of informed consent: Qualitative research and complex social worlds," Social Science & Medicine, Elsevier, vol. 65(11), pages 2199-2211, December.
    2. Guta, Adrian & Nixon, Stephanie A. & Wilson, Michael G., 2013. "Resisting the seduction of “ethics creep”: Using Foucault to surface complexity and contradiction in research ethics review," Social Science & Medicine, Elsevier, vol. 98(C), pages 301-310.
    3. Simpson, Bob & Khatri, Rekha & Ravindran, Deapica & Udalagama, Tharindi, 2015. "Pharmaceuticalisation and ethical review in South Asia: Issues of scope and authority for practitioners and policy makers," Social Science & Medicine, Elsevier, vol. 131(C), pages 247-254.
    4. Isto Huvila, 2011. "The politics of boundary objects: Hegemonic interventions and the making of a document," Journal of the American Society for Information Science and Technology, Association for Information Science & Technology, vol. 62(12), pages 2528-2539, December.
    5. Molyneux, Sassy & Geissler, P. Wenzel, 2008. "Ethics and the ethnography of medical research in Africa," Social Science & Medicine, Elsevier, vol. 67(5), pages 685-695, September.
    6. Isto Huvila, 2011. "The politics of boundary objects: Hegemonic interventions and the making of a document," Journal of the Association for Information Science & Technology, Association for Information Science & Technology, vol. 62(12), pages 2528-2539, December.
    7. Dixon-Woods, Mary & Angell, Emma & Ashcroft, Richard E. & Bryman, Alan, 2007. "Written work: The social functions of Research Ethics Committee letters," Social Science & Medicine, Elsevier, vol. 65(4), pages 792-802, August.
    8. Boulton, Mary & Parker, Michael, 2007. "Informed consent in a changing environment," Social Science & Medicine, Elsevier, vol. 65(11), pages 2187-2198, December.
    9. Kingori, Patricia, 2013. "Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics," Social Science & Medicine, Elsevier, vol. 98(C), pages 361-370.
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