Collective self-experimentation in patient-led research: How online health communities foster innovation
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DOI: 10.1016/j.socscimed.2019.112366
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References listed on IDEAS
- Barbot, Janine, 2006. "How to build an "active" patient? The work of AIDS associations in France," Social Science & Medicine, Elsevier, vol. 62(3), pages 538-551, February.
- Jannis Kallinikos & Niccolò Tempini, 2014. "Patient Data as Medical Facts: Social Media Practices as a Foundation for Medical Knowledge Creation," Information Systems Research, INFORMS, vol. 25(4), pages 817-833, December.
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Cited by:
- Enric Senabre Hidalgo & Mad P. Ball & Morgane Opoix & Bastian Greshake Tzovaras, 2022. "Shared motivations, goals and values in the practice of personal science: a community perspective on self-tracking for empirical knowledge," Palgrave Communications, Palgrave Macmillan, vol. 9(1), pages 1-12, December.
- Campbell, Patricia A., 2021. "Lay participation with medical expertise in online self-care practices: Social knowledge (co)production in the Running Mania injury forum," Social Science & Medicine, Elsevier, vol. 277(C).
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Keywords
United States; Embodied health movement; Internet; Collective embodiment; Psychedelics; Medical knowledge; Lay expertise; Citizen science;All these keywords.
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