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Research altruism as motivation for participation in community-centered environmental health research

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  • Carrera, Jennifer S.
  • Brown, Phil
  • Brody, Julia Green
  • Morello-Frosch, Rachel

Abstract

Protection of human subjects in research typically focuses on extrinsic rather than intrinsic motivations for participation in research. Recent sociological literature on altruism suggests that multiple kinds of altruism exist and are grounded in a sense of connection to common humanity. We interviewed participants in eight community-centered research studies that sampled for endocrine disrupting compounds and that shared research findings with participants. The results of our analysis of participation in these studies indicate that altruistic motivations were commonly held. We found that these sentiments were tied to feeling a sense of connection to society broadly, a sense of connection to science, or a sense of connection with the community partner organization. We develop a new concept of banal altruism to address mundane practices that work towards promoting social benefits. Further, we offer that research altruism is a specific type of banal altruism that is a multi-faceted and important reason for which individuals choose to participate in community-centered research.

Suggested Citation

  • Carrera, Jennifer S. & Brown, Phil & Brody, Julia Green & Morello-Frosch, Rachel, 2018. "Research altruism as motivation for participation in community-centered environmental health research," Social Science & Medicine, Elsevier, vol. 196(C), pages 175-181.
  • Handle: RePEc:eee:socmed:v:196:y:2018:i:c:p:175-181
    DOI: 10.1016/j.socscimed.2017.11.028
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    References listed on IDEAS

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    1. Williams, Brian & Entwistle, Vikki & Haddow, Gill & Wells, Mary, 2008. "Promoting research participation: Why not advertise altruism?," Social Science & Medicine, Elsevier, vol. 66(7), pages 1451-1456, April.
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    Cited by:

    1. Oridota, Olutobi & Shetty, Anuradha & Elaiho, Cordelia R. & Phelps, LaTanya & Cheng, Stephen & Vangeepuram, Nita, 2023. "Perspectives from diverse stakeholders in a youth community-based participatory research project," Evaluation and Program Planning, Elsevier, vol. 99(C).
    2. Baffoe-Bonnie, Marilyn S., 2022. "Lived experience with sickle cell disease: Predictors of altruistic participation in clinical research," Social Science & Medicine, Elsevier, vol. 313(C).

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