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To tell or not to tell: A qualitative interview study on disclosure decisions among children with inflammatory bowel disease

Author

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  • Barned, Claudia
  • Stinzi, Alain
  • Mack, David
  • O’Doherty, Kieran C.

Abstract

Living with a chronic illness poses many challenges, especially during the adolescent stage of development. Few studies have explored young people’s experiences of talking about their illness and how they go about deciding if and when they should tell others about their condition.

Suggested Citation

  • Barned, Claudia & Stinzi, Alain & Mack, David & O’Doherty, Kieran C., 2016. "To tell or not to tell: A qualitative interview study on disclosure decisions among children with inflammatory bowel disease," Social Science & Medicine, Elsevier, vol. 162(C), pages 115-123.
  • Handle: RePEc:eee:socmed:v:162:y:2016:i:c:p:115-123
    DOI: 10.1016/j.socscimed.2016.06.023
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    References listed on IDEAS

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    1. Dyson, Simon Martin & Atkin, Karl & Culley, Lorraine A. & Dyson, Sue E. & Evans, Hala & Rowley, Dave T., 2010. "Disclosure and sickle cell disorder: A mixed methods study of the young person with sickle cell at school," Social Science & Medicine, Elsevier, vol. 70(12), pages 2036-2044, June.
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    Cited by:

    1. Kate Muse & Emma Johnson & Annabel L. David, 2021. "A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease," IJERPH, MDPI, vol. 18(15), pages 1-28, July.
    2. E. Ann Holmes & Cathy Banwell & Robyn M Lucas & Joanna Hawkes & David Moore & Rachael Rodney Harris, 2021. "Experiences of Adolescents Who Are Living with Inflammatory Bowel Disease," Global Journal of Health Science, Canadian Center of Science and Education, vol. 13(4), pages 1-49, April.

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