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The European health data space: Too big to succeed?

Author

Listed:
  • Marelli, Luca
  • Stevens, Marthe
  • Sharon, Tamar
  • Van Hoyweghen, Ine
  • Boeckhout, Martin
  • Colussi, Ilaria
  • Degelsegger-Márquez, Alexander
  • El-Sayed, Seliem
  • Hoeyer, Klaus
  • van Kessel, Robin
  • Zając, Dorota Krekora
  • Matei, Mihaela
  • Roda, Sara
  • Prainsack, Barbara
  • Schlünder, Irene
  • Shabani, Mahsa
  • Southerington, Tom

Abstract

In May 2022, the European Commission issued the Proposal for a Regulation on the European Health Data Space (EHDS), with the aims of granting citizens increased access to and control of their (electronic) health data across the EU, and facilitating health data re-use for research, innovation, and policymaking. As the first in a series of European domain-specific “data spaces”, the EHDS is a high-stakes development that will transform health data governance in the EU region.

Suggested Citation

  • Marelli, Luca & Stevens, Marthe & Sharon, Tamar & Van Hoyweghen, Ine & Boeckhout, Martin & Colussi, Ilaria & Degelsegger-Márquez, Alexander & El-Sayed, Seliem & Hoeyer, Klaus & van Kessel, Robin & Zaj, 2023. "The European health data space: Too big to succeed?," Health Policy, Elsevier, vol. 135(C).
    • Handle: RePEc:eee:hepoli:v:135:y:2023:i:c:s016885102300146x
    DOI: 10.1016/j.healthpol.2023.104861
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    References listed on IDEAS

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    1. Skovgaard, Lea L. & Wadmann, Sarah & Hoeyer, Klaus, 2019. "A review of attitudes towards the reuse of health data among people in the European Union: The primacy of purpose and the common good," Health Policy, Elsevier, vol. 123(6), pages 564-571.
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    Cited by:

    1. Lievevrouw, Elisa & Marelli, Luca & Van Hoyweghen, Ine, 2024. "Weaving EU digital health policy into national healthcare practices. The making of a reimbursement standard for digital health technologies in Belgium," Social Science & Medicine, Elsevier, vol. 346(C).

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