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Guiding and supporting adolescents living with HIV in sub-Saharan Africa: The development of a curriculum for family and community members

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  • Winskell, Kate
  • Miller, Kim S.
  • Allen, Kristi Ann
  • Obong'o, Christopher O.

Abstract

Although HIV-related deaths declined globally by 30% between 2005 and 2012, those among adolescents living with HIV (ALHIV) rose by 50%. This discrepancy is primarily due to failure to address the specific needs of ALHIV and resulting poor clinical outcomes related to late diagnosis and poor adherence to antiretroviral therapy. The Families Matter! Program (FMP) is an evidence-based intervention for parents and caregivers of 9–12year-olds that promotes positive parenting practices and effective parent–child communication about sexuality and sexual risk reduction. It is delivered to groups of participants at the community level through a series of six weekly three-hour sessions. Recognizing family and community members' need for guidance on issues specific to ALHIV, we developed a seventh FMP session to address their needs. Key themes treated in the curriculum for this session include: stigma and mental health, disclosure, ART adherence and self-care, and responsible sexual relationships. In developing the curriculum, we drew on narratives about growing up with HIV contributed by young Africans to a 2013 scriptwriting competition. We describe the data-driven process of developing this curriculum with a view to informing the development of much-needed interventions to serve this vulnerable population.

Suggested Citation

  • Winskell, Kate & Miller, Kim S. & Allen, Kristi Ann & Obong'o, Christopher O., 2016. "Guiding and supporting adolescents living with HIV in sub-Saharan Africa: The development of a curriculum for family and community members," Children and Youth Services Review, Elsevier, vol. 61(C), pages 253-260.
    • Handle: RePEc:eee:cysrev:v:61:y:2016:i:c:p:253-260
    DOI: 10.1016/j.childyouth.2015.12.017
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    References listed on IDEAS

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    1. Winskell, Kate & Obyerodhyambo, Oby & Stephenson, Rob, 2011. "Making sense of condoms: Social representations in young people's HIV-related narratives from six African countries," Social Science & Medicine, Elsevier, vol. 72(6), pages 953-961, March.
    2. Lowenthal, Elizabeth D. & Jibril, Haruna B. & Sechele, Mmapula L. & Mathuba, Keofentse & Tshume, Ontibile & Anabwani, Gabriel M., 2014. "Disclosure of HIV status to HIV-infected children in a large African treatment center: Lessons learned in Botswana," Children and Youth Services Review, Elsevier, vol. 45(C), pages 143-149.
    3. Mburu, Gitau & Ram, Mala & Oxenham, Danielle & Haamujompa, Choolwe & Iorpenda, Kate & Ferguson, Laura, 2014. "Responding to adolescents living with HIV in Zambia: A social–ecological approach," Children and Youth Services Review, Elsevier, vol. 45(C), pages 9-17.
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    Cited by:

    1. Ahmed, Charisse V. & Weissinger, Guy & Teitelman, Anne & Sabelo Dlamini, Ndumiso & Patience Dlamini, Nontsikelelo & Cebsile Dlamini, Thuthukile & Nkambule, Angel & Nkambule, Siphesihle & Brawner, Brid, 2022. "Expert client service delivery practices among adolescents living with HIV in Eswatini: A thematic analysis," Children and Youth Services Review, Elsevier, vol. 132(C).

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