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An exploration of voluntarily abandoned free health services among children with disabilities in China: An ideological conflict perspective

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  • Wang, Yuan
  • Zhu, Yueqi
  • Qi, Cai Yun
  • Zhang, Qian

Abstract

In terms of protecting children with disabilities, healthcare rights are a crucial issue that cannot be ignored. In China, although the government provides generous health services, children with disabilities abandoning those services is a common phenomenon. Few scholars have directly and systematically studied this important issue. Using a qualitative method, we investigated the experiences and feelings of six service providers and twelve primary caregivers. From an ideological conflict perspective, we have found that China is a social context in which the state-led ideology of egalitarianism and the ideology of developmentalism co-exist but clash at the level of local governments and organizations. We produced two themes: (a) Governance methods arising from developmentalism produce invisible institutional exclusion in the form of non-client-centered tasks, constraints surrounding service costs, competitive welfare development models, and “good” performance chasing; (b) parents operating under developmentalism treat children with disabilities as abnormal, unprofitable, burdensome, and tragic, which encourages the voluntarily abandonment of healthcare services. The interaction of these two themes strengthens the ideological split occurring between them, leading to the widespread deprivation of health rights among children with disabilities. The results of this study call for critical reflections on disability policy implementation under this current conflicting ideology.

Suggested Citation

  • Wang, Yuan & Zhu, Yueqi & Qi, Cai Yun & Zhang, Qian, 2022. "An exploration of voluntarily abandoned free health services among children with disabilities in China: An ideological conflict perspective," Children and Youth Services Review, Elsevier, vol. 136(C).
  • Handle: RePEc:eee:cysrev:v:136:y:2022:i:c:s0190740922000780
    DOI: 10.1016/j.childyouth.2022.106442
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    References listed on IDEAS

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    1. Stephen Kidd, 2017. "Social exclusion and access to social protection schemes," Journal of Development Effectiveness, Taylor & Francis Journals, vol. 9(2), pages 212-244, April.
    2. Yu, Miao & Qi, Cai Yun & To, Siu-ming, 2020. "The evolution and involution of service provision: Interactional understanding of the welfare of urban youth with disabilities in China," Children and Youth Services Review, Elsevier, vol. 109(C).
    3. Ann Anagnost, 2008. "From ‘Class’ to ‘Social Strata': grasping the social totality in reform-era China," Third World Quarterly, Taylor & Francis Journals, vol. 29(3), pages 497-519.
    4. Reshma Parvin Nuri & Setareh Ghahari & Heather Michelle Aldersey & Ahmed Shafiqul Huque, 2020. "Exploring access to government-led support for children with disabilities in Bangladesh," PLOS ONE, Public Library of Science, vol. 15(7), pages 1-18, July.
    5. Ge, Zhong-Ming & Chen, Ren-Xing & Tang, Wei-Zhong & Cong, Yu, 2021. "Why strong employment support for persons with disabilities has not brought about positive outcomes? A qualitative study in mainland China," Children and Youth Services Review, Elsevier, vol. 121(C).
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