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Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies

Author

Listed:
  • Rios, D.
  • Magasi, S.
  • Novak, C.
  • Harniss, M.

Abstract

Peoplewithdisabilitiesarelargely absentfrom mainstream healthresearch.Exclusionof people with disabilities may be explicit, attributable to poorly justified exclusion criteria, or implicit,attributable toinaccessiblestudy documents,interventions, orresearch measures. Meanwhile, people with disabilities experience poorer health, greater incidence of chronic conditions, and higher health care expenditure than people without disabilities.We outline our approach to "accessible research design"-research accessible to and inclusive of people with disabilities. We describe a model that includes 3 tiers: universal design, accommodations, and modifications. Through our work on several large-scale research studies, we provide pragmatic examples of accessible research design. Making efforts to include people with disabilities in public health, epidemiological, and outcomes studies will enhance the interpretability of findings for a significant patient population.

Suggested Citation

  • Rios, D. & Magasi, S. & Novak, C. & Harniss, M., 2016. "Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies," American Journal of Public Health, American Public Health Association, vol. 106(12), pages 2137-2144.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2016.303448_7
    DOI: 10.2105/AJPH.2016.303448
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    Cited by:

    1. Kim D. Anderson, 2023. "Including People with Spinal Cord Injury in Research as Participants, Partners, and Personnel," IJERPH, MDPI, vol. 20(15), pages 1-6, July.
    2. Aniza Ismail & Ruhana Sk Abd Razak & Leny Suzana Suddin & Aidalina Mahmud & Sazlina Kamaralzaman & Ghazali Yusri, 2022. "The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: A Mixed Methods Study," IJERPH, MDPI, vol. 19(1), pages 1-21, January.
    3. Hye Jin Nam & Ju Young Yoon, 2021. "Linking Health Literacy to Self-Care in Hypertensive Patients with Physical Disabilities: A Path Analysis Using a Multi-Mediation Model," IJERPH, MDPI, vol. 18(7), pages 1-15, March.

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