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Creating research capacity through a tribally based institutional review board

Author

Listed:
  • Morton, D.J.
  • Proudfit, J.
  • Calac, D.
  • Portillo, M.
  • Lofton-Fitzsimmons, G.
  • Molina, T.
  • Flores, R.
  • Lawson-Risso, B.
  • Majel-McCauley, R.

Abstract

Tribal groups work tirelessly to maintain sovereignty rights, preserving and upholding tribal authority and protection over their land, people, businesses, and health. Moreover, the conduct of health science research by outsiders has had its share of an unethical, misguided, and abusive past. Tribally based institutional review boards (IRBs) are addressing these issues in an effort to control new health science research, set their own research agenda, and protect their people in the same spirit as has been accomplished through the perpetuation of sovereignty rights. We describe the success of a tribally based IRB at creating new capacity for health research and enhanced levels of trust, including bidirectional cultural education between academic researchers and tribal IRB committee members.

Suggested Citation

  • Morton, D.J. & Proudfit, J. & Calac, D. & Portillo, M. & Lofton-Fitzsimmons, G. & Molina, T. & Flores, R. & Lawson-Risso, B. & Majel-McCauley, R., 2013. "Creating research capacity through a tribally based institutional review board," American Journal of Public Health, American Public Health Association, vol. 103(12), pages 2160-2164.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2013.301473_5
    DOI: 10.2105/AJPH.2013.301473
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    Cited by:

    1. Vanessa Y. Hiratsuka & Julie A. Beans & Renee F. Robinson & Jennifer L. Shaw & Ileen Sylvester & Denise A. Dillard, 2017. "Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation," IJERPH, MDPI, vol. 14(11), pages 1-11, October.
    2. Julie A. Beans & Bobby Saunkeah & R. Brian Woodbury & Terry S. Ketchum & Paul G. Spicer & Vanessa Y. Hiratsuka, 2019. "Community Protections in American Indian and Alaska Native Participatory Research—A Scoping Review," Social Sciences, MDPI, vol. 8(4), pages 1-18, April.

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