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The power and the promise: Working with communities to analyze data, interpret findings, and get to outcomes

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  • Cashman, S.B.
  • Adeky, S.
  • Allen III, A.J.
  • Corburn, J.
  • Israel, B.A.
  • Montaño, J.
  • Rafelito, A.
  • Rhodes, S.D.
  • Swanston, S.
  • Wallerstein, N.
  • Eng, E.

Abstract

Although the intent of community-based participatory research (CBPR) is to include community voices in all phases of a research initiative, community partners appear less frequently engaged in data analysis and interpretation than in other research phases. Using 4 brief case studies, each with a different data collection methodology, we provide examples of how community members participated in data analysis, interpretation, or both, thereby strengthening community capacity and providing unique insight. The roles and skills of the community and academic partners were different from but complementary to each other. We suggest that including community partners in data analysis and interpretation, while lengthening project time, enriches insights and findings and consequently should be a focus of the next generation of CBPR initiatives.

Suggested Citation

  • Cashman, S.B. & Adeky, S. & Allen III, A.J. & Corburn, J. & Israel, B.A. & Montaño, J. & Rafelito, A. & Rhodes, S.D. & Swanston, S. & Wallerstein, N. & Eng, E., 2008. "The power and the promise: Working with communities to analyze data, interpret findings, and get to outcomes," American Journal of Public Health, American Public Health Association, vol. 98(8), pages 1407-1417.
    • Handle: RePEc:aph:ajpbhl:10.2105/ajph.2007.113571_4
    DOI: 10.2105/AJPH.2007.113571
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    2. Pinto, Rogério M. & da Silva, Sueli Bulhões & Soriano, Rafaela, 2012. "Community Health Workers in Brazil’s Unified Health System: A framework of their praxis and contributions to patient health behaviors," Social Science & Medicine, Elsevier, vol. 74(6), pages 940-947.
    3. Tremblay, Melissa & Gokiert, Rebecca & Kingsley, Bethan & Mottershead, Karen & Pei, Jacqueline, 2020. "Using developmental evaluation and community-based participatory research to develop a model of supportive housing," Evaluation and Program Planning, Elsevier, vol. 82(C).
    4. Prasanthi Puvanachandra & Anthony Mugeere & Charles Ssemugabo & Olive Kobusingye & Margaret Peden, 2024. "Voices from the Ground: Community Perspectives on Preventing Unintentional Child Injuries in Low-Income Settings," IJERPH, MDPI, vol. 21(3), pages 1-15, February.
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    6. Sophie Staniszewska & Kirstie Haywood & Jo Brett & Liz Tutton, 2012. "Patient and Public Involvement in Patient-Reported Outcome Measures," The Patient: Patient-Centered Outcomes Research, Springer;International Academy of Health Preference Research, vol. 5(2), pages 79-87, June.
    7. Ryan Petteway & Mahasin Mujahid & Amani Allen & Rachel Morello-Frosch, 2019. "Towards a People’s Social Epidemiology: Envisioning a More Inclusive and Equitable Future for Social Epi Research and Practice in the 21st Century," IJERPH, MDPI, vol. 16(20), pages 1-21, October.
    8. Jae M. Sevelius & Orlando O. Harris & Lisa Bowleg, 2024. "Intersectional Mentorship in Academic Medicine: A Conceptual Review," IJERPH, MDPI, vol. 21(4), pages 1-11, April.
    9. Fernald, Douglas H. & Zittleman, Linda & Gilchrist, Emma C. & Brou, Lina I. & Brou, Lina I. & Niebauer, Linda & Ledonne, Charlotte & Sutter, Christin & Felzien, Maret & Westfall, John M. & Green, Larr, 2021. "UPSTREAM! Together evaluation results from community efforts to prevent mental, emotional, and behavioral health problems," Evaluation and Program Planning, Elsevier, vol. 89(C).
    10. Pinto, R.M. & Rahman, R. & Williams, A., 2014. "Policy advocacy and leadership training for formerly incarcerated women: An empowerment evaluation of ReConnect, a program of the Women in Prison Project, Correctional Association of New York," Evaluation and Program Planning, Elsevier, vol. 47(C), pages 71-81.
    11. Garett Sansom & Philip Berke & Thomas McDonald & Eva Shipp & Jennifer Horney, 2016. "Confirming the Environmental Concerns of Community Members Utilizing Participatory-Based Research in the Houston Neighborhood of Manchester," IJERPH, MDPI, vol. 13(9), pages 1-12, August.
    12. Jacqueline E. Cardoza & Carina J. Gronlund & Justin Schott & Todd Ziegler & Brian Stone & Marie S. O’Neill, 2020. "Heat-Related Illness Is Associated with Lack of Air Conditioning and Pre-Existing Health Problems in Detroit, Michigan, USA: A Community-Based Participatory Co-Analysis of Survey Data," IJERPH, MDPI, vol. 17(16), pages 1-11, August.
    13. Barbara Fallon & Joanne Filippelli & Tara Black & Nico Trocmé & Tonino Esposito, 2017. "How Can Data Drive Policy and Practice in Child Welfare? Making the Link in Canada," IJERPH, MDPI, vol. 14(10), pages 1-15, October.
    14. Ruta K. Valaitis & Olive Wahoush & Nancy Murray & Sandy Isaacs & David Derbyshire & Dyanne Semogas & Steven Rolfe, 2016. "Street Smarts ↔ Book Smarts," SAGE Open, , vol. 6(3), pages 21582440166, July.
    15. Constantine E. Kontokosta, 2016. "The Quantified Community and Neighborhood Labs: A Framework for Computational Urban Science and Civic Technology Innovation," Journal of Urban Technology, Taylor & Francis Journals, vol. 23(4), pages 67-84, October.
    16. Erdem, Seda & Campbell, Danny & Thompson, Carl, 2014. "Elimination and selection by aspects in health choice experiments: Prioritising health service innovations," Journal of Health Economics, Elsevier, vol. 38(C), pages 10-22.
    17. Erdem, Seda & Campbell, Danny & Thompson, Carl, 2014. "Addressing elimination and selection by aspects decision rules in discrete choice experiments: does it matter?," 2014 Annual Meeting, July 27-29, 2014, Minneapolis, Minnesota 169839, Agricultural and Applied Economics Association.
    18. Barbara L. Allen & Johanna Lees & Alison K. Cohen & Maxime Jeanjean, 2019. "Collaborative Workshops for Community Meaning-Making and Data Analyses: How Focus Groups Strengthen Data by Enhancing Understanding and Promoting Use," IJERPH, MDPI, vol. 16(18), pages 1-19, September.

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