IDEAS home Printed from https://ideas.repec.org/p/pra/mprapa/29836.html
   My bibliography  Save this paper

A qualitative study exploring the general population’s perception of rheumatoid arthritis after being informed about disease adaptation

Author

Listed:
  • McTaggart-Cowan, H
  • O'Cathain, A
  • Tsuchiya, A
  • Brazier, J

Abstract

Purpose: This study aimed to gain an understanding of what factors induce individuals to alter their opinions about a health condition after being informed about disease adaptation and being given time to reflect and deliberate on this information. Rheumatoid arthritis (RA) states are used as an illustration. Methods: Semi-structured interviews were conducted with 12 members of the general population. They completed two time trade-off exercises for three RA states and underwent an adaptation exercise (AE) which consisted of listening to recordings of patients discussing how they adapted to RA. Also included was a structured discussion to encourage the participant to reflect on how the patients have adapted. Participants were shown their own health state values, as well as patient values. Findings: After being informed about disease adaptation and reflecting on the information, participants were more likely to consider adaptation and alter their opinions of RA if they were able to empathise with the patients in the AE. This enabled individuals to feel that they could cope by reflecting on their experience of RA in family and friends, by drawing on others for support if they had RA, and by having a positive attitude towards life. Conclusions: The results demonstrate that there is a range of reasons for which people change their perceptions about RA; this requires further exploration.

Suggested Citation

  • McTaggart-Cowan, H & O'Cathain, A & Tsuchiya, A & Brazier, J, 2009. "A qualitative study exploring the general population’s perception of rheumatoid arthritis after being informed about disease adaptation," MPRA Paper 29836, University Library of Munich, Germany.
    • Handle: RePEc:pra:mprapa:29836
    as

    Download full text from publisher

    File URL: https://mpra.ub.uni-muenchen.de/29836/1/MPRA_paper_29836.pdf
    File Function: original version
    Download Restriction: no
    ---><---

    References listed on IDEAS

    as
    1. McTaggart-Cowan, H & Brazier, J & Tsuchiya, A, 2008. "Combining Rasch and cluster analysis: a novel method for developing rheumatoid arthritis states for use in valuation studies," MPRA Paper 29834, University Library of Munich, Germany.
    2. Damschroder, Laura J. & Zikmund-Fisher, Brian J. & Ubel, Peter A., 2005. "The impact of considering adaptation in health state valuation," Social Science & Medicine, Elsevier, vol. 61(2), pages 267-277, July.
    3. Menzel, Paul & Dolan, Paul & Richardson, Jeff & Olsen, Jan Abel, 2002. "The role of adaptation to disability and disease in health state valuation: a preliminary normative analysis," Social Science & Medicine, Elsevier, vol. 55(12), pages 2149-2158, December.
    Full references (including those not matched with items on IDEAS)

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. McTaggart-Cowan, Helen & Tsuchiya, Aki & O'Cathain, Alicia & Brazier, John, 2011. "Understanding the effect of disease adaptation information on general population values for hypothetical health states," Social Science & Medicine, Elsevier, vol. 72(11), pages 1904-1912, June.

    Most related items

    These are the items that most often cite the same works as this one and are cited by the same works as this one.
    1. McTaggart-Cowan, Helen & Tsuchiya, Aki & O'Cathain, Alicia & Brazier, John, 2011. "Understanding the effect of disease adaptation information on general population values for hypothetical health states," Social Science & Medicine, Elsevier, vol. 72(11), pages 1904-1912, June.
    2. Dolan, Paul & Kavetsos, Georgios & Tsuchiya, Aki, 2013. "Sick but satisfied: The impact of life and health satisfaction on choice between health scenarios," Journal of Health Economics, Elsevier, vol. 32(4), pages 708-714.
    3. John Brazier & Donna Rowen & Milad Karimi & Tessa Peasgood & Aki Tsuchiya & Julie Ratcliffe, 2018. "Experience-based utility and own health state valuation for a health state classification system: why and how to do it," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 19(6), pages 881-891, July.
    4. Patricia Cubí‐Mollá & Mireia Jofre‐Bonet & Victoria Serra‐Sastre, 2017. "Adaptation to health states: Sick yet better off?," Health Economics, John Wiley & Sons, Ltd., vol. 26(12), pages 1826-1843, December.
    5. Cubi-Molla, P. & De Vries, J. & Devlin, N., 2013. "A Study of the Relationship Between Health and Subjective Well-being in Parkinson’s Disease Patients," Working Papers 13/12, Department of Economics, City University London.
    6. Damschroder, Laura J. & Zikmund-Fisher, Brian J. & Ubel, Peter A., 2005. "The impact of considering adaptation in health state valuation," Social Science & Medicine, Elsevier, vol. 61(2), pages 267-277, July.
    7. Graham, Liam & Oswald, Andrew J., 2006. "Hedonic Capital," Economic Research Papers 269638, University of Warwick - Department of Economics.
    8. Krekel, Christian & De Neve, Jan-Emmanuel & Fancourt, Daisy & Layard, Richard, 2021. "A local community course that raises wellbeing and pro-sociality: Evidence from a randomised controlled trial," Journal of Economic Behavior & Organization, Elsevier, vol. 188(C), pages 322-336.
    9. Octave Jokung & Serge Macé, 2013. "Long-term health investment when people underestimate their adaptation to old age-related health problems," The European Journal of Health Economics, Springer;Deutsche Gesellschaft für Gesundheitsökonomie (DGGÖ), vol. 14(6), pages 1003-1013, December.
    10. Thébaut, Clémence, 2013. "Dealing with moral dilemma raised by adaptive preferences in health technology assessment: The example of growth hormones and bilateral cochlear implants," Social Science & Medicine, Elsevier, vol. 99(C), pages 102-109.
    11. Kharroubi, Samer & Brazier, John E. & O'Hagan, Anthony, 2007. "Modelling covariates for the SF-6D standard gamble health state preference data using a nonparametric Bayesian method," Social Science & Medicine, Elsevier, vol. 64(6), pages 1242-1252, March.
    12. repec:cup:judgdm:v:4:y:2009:i:2:p:141-146 is not listed on IDEAS
    13. Erik Nord & Jose Luis Pinto & Jeff Richardson & Paul Menzel & Peter Ubel, 1999. "Incorporating societal concerns for fairness in numerical valuations of health programmes," Health Economics, John Wiley & Sons, Ltd., vol. 8(1), pages 25-39, February.
    14. Shehzad Ali & Aki Tsuchiya & Miqdad Asaria & Richard Cookson, 2017. "How Robust Are Value Judgments of Health Inequality Aversion? Testing for Framing and Cognitive Effects," Medical Decision Making, , vol. 37(6), pages 635-646, August.
    15. Stöckel, Jannis & van Exel, Job & Brouwer, Werner B.F., 2023. "Adaptation in life satisfaction and self-assessed health to disability - Evidence from the UK," Social Science & Medicine, Elsevier, vol. 328(C).
    16. Rachel Mann & John Brazier & Aki Tsuchiya, 2009. "A comparison of patient and general population weightings of EQ‐5D dimensions," Health Economics, John Wiley & Sons, Ltd., vol. 18(3), pages 363-372, March.
    17. Carbone, Jared C. & Kverndokk, Snorre & Rogeberg, Ole Jorgen, 2005. "Smoking, health, risk, and perception," Journal of Health Economics, Elsevier, vol. 24(4), pages 631-653, July.
    18. Michael Lokshin & Martin Ravallion, 2008. "Testing for an economic gradient in health status using subjective data," Health Economics, John Wiley & Sons, Ltd., vol. 17(11), pages 1237-1259, November.
    19. Schünemann, Johannes & Strulik, Holger & Trimborn, Timo, 2017. "Going from bad to worse: Adaptation to poor health health spending, longevity, and the value of life," Journal of Economic Behavior & Organization, Elsevier, vol. 140(C), pages 130-146.
    20. Charles Christian Adarkwah & Amirhossein Sadoghi & Afschin Gandjour, 2016. "Should Cost‐Effectiveness Analysis Include the Cost of Consumption Activities? AN Empirical Investigation," Health Economics, John Wiley & Sons, Ltd., vol. 25(2), pages 249-256, February.
    21. Paul Dolan & Jan Abel Olsen & Paul Menzel & Jeff Richardson, 2003. "An inquiry into the different perspectives that can be used when eliciting preferences in health," Health Economics, John Wiley & Sons, Ltd., vol. 12(7), pages 545-551, July.

    More about this item

    Keywords

    health state valuation; qualitative research; quality of life; disease adaptation;
    All these keywords.

    JEL classification:

    • I31 - Health, Education, and Welfare - - Welfare, Well-Being, and Poverty - - - General Welfare, Well-Being
    • I19 - Health, Education, and Welfare - - Health - - - Other

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:pra:mprapa:29836. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    If CitEc recognized a bibliographic reference but did not link an item in RePEc to it, you can help with this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Joachim Winter (email available below). General contact details of provider: https://edirc.repec.org/data/vfmunde.html .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.