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Endometriosis, infertility and occupational life: women's plea for recognition

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  • Letizia Gremillet

    (AMU SMPM MED - Aix-Marseille Université - École de médecine - AMU SMPM - Aix-Marseille Université - Faculté des sciences médicales et paramédicales - AMU - Aix Marseille Université, LA CONCEPTION - Hôpital de la Conception [CHU - APHM])

  • Antoine Netter

    (AMU SMPM MED - Aix-Marseille Université - École de médecine - AMU SMPM - Aix-Marseille Université - Faculté des sciences médicales et paramédicales - AMU - Aix Marseille Université, IMBE - Institut méditerranéen de biodiversité et d'écologie marine et continentale - AU - Avignon Université - AMU - Aix Marseille Université - Institut de recherche pour le développement [IRD] : UMR237 - CNRS - Centre National de la Recherche Scientifique)

  • Irène Sari-Minodier

    (IMBE - Institut méditerranéen de biodiversité et d'écologie marine et continentale - AU - Avignon Université - AMU - Aix Marseille Université - Institut de recherche pour le développement [IRD] : UMR237 - CNRS - Centre National de la Recherche Scientifique, TIMONE - Hôpital de la Timone [CHU - APHM])

  • Laura Miquel

    (AMU SMPM MED - Aix-Marseille Université - École de médecine - AMU SMPM - Aix-Marseille Université - Faculté des sciences médicales et paramédicales - AMU - Aix Marseille Université, LA CONCEPTION - Hôpital de la Conception [CHU - APHM])

  • Arnaud Lacan

    (KEDGE Business School [Marseille], AMSE - Aix-Marseille Sciences Economiques - EHESS - École des hautes études en sciences sociales - AMU - Aix Marseille Université - ECM - École Centrale de Marseille - CNRS - Centre National de la Recherche Scientifique)

  • Blandine Courbiere

    (AMU SMPM MED - Aix-Marseille Université - École de médecine - AMU SMPM - Aix-Marseille Université - Faculté des sciences médicales et paramédicales - AMU - Aix Marseille Université, IMBE - Institut méditerranéen de biodiversité et d'écologie marine et continentale - AU - Avignon Université - AMU - Aix Marseille Université - Institut de recherche pour le développement [IRD] : UMR237 - CNRS - Centre National de la Recherche Scientifique, LA CONCEPTION - Hôpital de la Conception [CHU - APHM])

Abstract

The objective of this study was to explore and describe the specificities of the occupational life of infertile endometriotic women treated by in vitro fertilization. We conducted a qualitative monocentric study between December 2020 and June 2021. Twelve semi-structured in-depth interviews using a theme-based interview guide with open questions were undertaken with infertile women with deep infiltrating endometriosis. Data analysis was conducted using an inductive approach according to the grounded theory method. Three main themes emerged from the interviews: (i) barriers to reconciling illness and work life, (ii) facilitating factors for well-being at work, and (iii) consequences and outlooks. It appeared that the time of infertility treatment represents a particular period of change in the working lives of women with endometriosis. For most women, these changes are experienced negatively, often with a renunciation of goals. For others, this is the time to communicate the difficulties linked to their illness to their professional entourage. There is a long path ahead to finally achieving recognition of endometriosis in the context of professional life.

Suggested Citation

  • Letizia Gremillet & Antoine Netter & Irène Sari-Minodier & Laura Miquel & Arnaud Lacan & Blandine Courbiere, 2023. "Endometriosis, infertility and occupational life: women's plea for recognition," Post-Print hal-03991237, HAL.
    • Handle: RePEc:hal:journl:hal-03991237
    DOI: 10.1186/s12905-023-02183-9
    Note: View the original document on HAL open archive server: https://hal.science/hal-03991237
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    Keywords

    Endometriosis; Qualitative study; In vitro fertilization;
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