IDEAS home Printed from https://ideas.repec.org/h/spr/prochp/978-3-319-94487-6_8.html
   My bibliography  Save this book chapter

Citizens’ Cooperation in the Reuse of Their Personal Data: The Case of Data Cooperatives in Healthcare

In: Collaboration in the Digital Age

Author

Listed:
  • Joan Rodon Mòdol

    (ESADE Business School)

Abstract

The advent of big data analytics is creating new opportunities for the reuse of personal health data which are economically and socially desirable. Yet the way the reuse of personal data is organized impacts not only the types of benefits but also the way those benefits are distributed among subjects, holders and consumers of data and society in general. This paper analyses and compares three dominant approaches to organizing personal data reuse reported in the literature: healthcare system-centric, for-profit data-driven, and individual-centric. This analysis reveals a challenge of existing approaches: they do not guarantee that data subjects have a say over how their personal data is reused while at the same time ensuring that data consumers see value in reusing that data. This chapter suggest that an emergent organizational form that addresses this challenge is that of data cooperatives (DCs). DCs represent a new logic of cooperation of data subjects who voluntary pool their personal data and participate in the governance of its reuse. To illustrate the working of DCs, this chapter conducts a case study of a DC in healthcare.

Suggested Citation

  • Joan Rodon Mòdol, 2019. "Citizens’ Cooperation in the Reuse of Their Personal Data: The Case of Data Cooperatives in Healthcare," Progress in IS, in: Kai Riemer & Stefan Schellhammer & Michaela Meinert (ed.), Collaboration in the Digital Age, chapter 0, pages 159-185, Springer.
    • Handle: RePEc:spr:prochp:978-3-319-94487-6_8
    DOI: 10.1007/978-3-319-94487-6_8
    as

    Download full text from publisher

    To our knowledge, this item is not available for download. To find whether it is available, there are three options:
    1. Check below whether another version of this item is available online.
    2. Check on the provider's web page whether it is in fact available.
    3. Perform a search for a similarly titled item that would be available.

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:spr:prochp:978-3-319-94487-6_8. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Sonal Shukla or Springer Nature Abstracting and Indexing (email available below). General contact details of provider: http://www.springer.com .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.