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Questioning the dominant welfare discourse on personalization and autonomy embodied in personal budget policy

In: Research Handbook on Disability Policy

Author

Listed:
  • Toon Benoot
  • Rudi Roose

Abstract

Personal budget policies have been introduced in various welfare regimes as a means to integrate a demand-driven approach in the sector of care and support for people with disabilities. This chapter unravels how personal budget policies have clear roots in a humanist discourse that emphasizes a rational citizen as a neutral description of the human being. The experiences of ten people with intellectual disabilities who took part in a participatory photovoice project challenge this discourse through revealing that autonomy and personalization are primarily relational concepts. We draw from these stories to argue for a critical view on human rights that balances the usefulness of an appeal to individual human rights against a careful consideration of what is achieved through such an appeal. That implies the need for a continued inquiry that maximizes the diversity of the notions of personalization and autonomy.

Suggested Citation

  • Toon Benoot & Rudi Roose, 2023. "Questioning the dominant welfare discourse on personalization and autonomy embodied in personal budget policy," Chapters, in: Sally Robinson & Karen R. Fisher (ed.), Research Handbook on Disability Policy, chapter 30, pages 361-373, Edward Elgar Publishing.
  • Handle: RePEc:elg:eechap:20096_30
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