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Effects of self‐management education for persons with Parkinson's disease and their care partners: A qualitative observational study in clinical care

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  • Carina Hellqvist
  • Carina Berterö
  • Peter Hagell
  • Nil Dizdar
  • Märta Sund‐Levander

Abstract

Persons with Parkinson's disease and their care partners want support from health care to develop the skills to handle everyday life with the long‐term condition. Earlier findings indicate that participants of the self‐management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study was to explore if participants had implemented the strategies of self‐monitoring included in the program and use them to communicate health care status and needs in clinical encounters. Data were collected 3 to 15 months after participation in the program and analyzed using constant comparative analysis. Three categories were evident: “Self‐observation in everyday life,” “Self‐care activities to promote health,” and “Managing emotional impact of Parkinson's Disease.” Categories were linked together in a core category that highlight the use of self‐management strategies described by participants during clinical encounters. Results confirmed that persons with Parkinson's disease and care partners use the techniques of self‐observation in their everyday lives. Observations of effects in clinical care can be a valuable approach to evaluate the outcomes educational interventions and their benefits for individuals and health care.

Suggested Citation

  • Carina Hellqvist & Carina Berterö & Peter Hagell & Nil Dizdar & Märta Sund‐Levander, 2020. "Effects of self‐management education for persons with Parkinson's disease and their care partners: A qualitative observational study in clinical care," Nursing & Health Sciences, John Wiley & Sons, vol. 22(3), pages 741-748, September.
    • Handle: RePEc:wly:nuhsci:v:22:y:2020:i:3:p:741-748
    DOI: 10.1111/nhs.12721
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    1. Carina Hellqvist & Nil Dizdar & Peter Hagell & Carina Berterö & Märta Sund‐Levander, 2018. "Improving self‐management for persons with Parkinson's disease through education focusing on management of daily life: Patients’ and relatives’ experience of the Swedish National Parkinson School," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(19-20), pages 3719-3728, October.
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    Cited by:

    1. Hyeon Sik Chu & Hye Young Jang, 2022. "Exploring Unmet Information Needs of People with Parkinson’s Disease and Their Families: Focusing on Information Sharing in an Online Patient Community," IJERPH, MDPI, vol. 19(5), pages 1-10, February.
    2. Carina Hellqvist, 2021. "Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions—A Proposed Model to Guide Clinical Care," IJERPH, MDPI, vol. 18(5), pages 1-15, February.

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