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Pediatric liver transplant patients’ transition to adulthood: Patient and parent experiences

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  • Yaprak Sarigol Ordin
  • Özgül Karayurt
  • Tarkan Ünek
  • İbrahim Astarcıoğlu

Abstract

This qualitative research study describes the experiences of child and adolescent liver transplant recipients and their parents during the patients’ transition to adulthood. Data were collected from pediatric liver transplant recipients and their parents during individual interviews, and these were later analyzed using conventional content analysis. Seven main themes emerged: coping, self‐management, body image, social relationships, academic life, work life, and live donors. Study results revealed that the patients who received liver transplants during their childhood and adolescence used both effective and ineffective strategies to cope with the difficulties they faced during the transition period into adulthood. The parents experienced many problems: on learning of their child's need for a transplant, parents were advised that they should consider becoming a live donor. This very difficult decision was a source of great stress and required serious consideration. After transplantation the parents wanted their children to have autonomy but could not encourage them because of concerns for their health.

Suggested Citation

  • Yaprak Sarigol Ordin & Özgül Karayurt & Tarkan Ünek & İbrahim Astarcıoğlu, 2017. "Pediatric liver transplant patients’ transition to adulthood: Patient and parent experiences," Nursing & Health Sciences, John Wiley & Sons, vol. 19(3), pages 393-399, September.
  • Handle: RePEc:wly:nuhsci:v:19:y:2017:i:3:p:393-399
    DOI: 10.1111/nhs.12358
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    References listed on IDEAS

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    1. Yaprak S. Ordin & Özgül Karayurt & Sally Wellard, 2013. "Investigation of adaptation after liver transplantation using Roy's Adaptation Model," Nursing & Health Sciences, John Wiley & Sons, vol. 15(1), pages 31-38, March.
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