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Re‐embodying eating after surgery for oesophageal cancer: Patients' lived experiences of participating in an education and counselling nutritional intervention

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  • Malene Missel
  • Mette Hansen
  • Rie Jackson
  • Mette Siemsen
  • Mai Nanna Schønau

Abstract

Aims and objectives To provide in‐depth insight into patients' lived experiences of participating in an education and counselling nutritional intervention after curative surgery for oesophageal cancer. Background Surgery for oesophageal cancer carries a risk of malnutrition. The consequences of nutritional problems may lead to increased morbidity and mortality postoperatively and have consequences for convalescence, rehabilitation and quality of life. Design Qualitative study based on a phenomenological approach. The theoretical framework was grounded in the philosophy of Merleau‐Ponty. Methods Qualitative interviews were conducted with 10 patients who participated in an education and counselling nutritional intervention after surgery for oesophageal squamous‐cell carcinoma. Data were analysed according to the principles of Kvale and Brinkmann, and their three levels of interpretation were applied. Findings The essence of experiencing the education and counselling nutritional intervention can be divided into three themes: embodied disorientation, living with increased attention to bodily functions and re‐embodying eating. Conclusions Patients were living with increased attention to bodily functions and tried to find a balance between the task of eating and nutritional needs. Despite the embodied perceptions of alterations after oesophageal cancer surgery, the patients developed high levels of bodily awareness and skills in self‐management. This process was characterised by reconnecting to the body and re‐embodying eating. The intervention empowered the patients to regain some control of their own bodies in an effort to regain agency in their own lives. Relevance to clinical practice There is a need for systematic long‐term follow‐up after surgery for oesophageal cancer regarding nutrition. The findings of this study can inform future supportive nutrition care service development aimed at supporting patients to learn to eat sufficiently after oesophageal resection.

Suggested Citation

  • Malene Missel & Mette Hansen & Rie Jackson & Mette Siemsen & Mai Nanna Schønau, 2018. "Re‐embodying eating after surgery for oesophageal cancer: Patients' lived experiences of participating in an education and counselling nutritional intervention," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(7-8), pages 1420-1430, April.
  • Handle: RePEc:wly:jocnur:v:27:y:2018:i:7-8:p:1420-1430
    DOI: 10.1111/jocn.14297
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    1. Ragnhild JT Sekse & Målfrid Råheim & Gunnhild Blåka & Eva Gjengedal, 2012. "Living through gynaecological cancer: three typologies," Journal of Clinical Nursing, John Wiley & Sons, vol. 21(17‐18), pages 2626-2635, September.
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