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The coping experiences of spouses of persons with dementia

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Listed:
  • Janne Myhre
  • Johanne Bjørnstad Tonga
  • Ingun Dina Ulstein
  • Sevald Høye
  • Kari Kvaal

Abstract

Aims and objectives To explore how spouses who are caregivers to persons with dementia experience everyday life 6–12 months after participation in the intervention condition in the Norwegian Cognitive Behavioural Therapy for Early Dementia (N‐CORDIAL) study. Background There is no current medical curative treatment for cognitive impairment and dementia‐associated conditions. These conditions will lead to an increased need for daily assistance and care, as well as greater stress for caregivers. The Norwegian CORDIAL Study is a manual‐based randomised controlled trial based on the German CORDIAL study (cognitive rehabilitation and cognitive behavioural treatment for early dementia in Alzheimer's disease), consisting of cognitive rehabilitation, cognitive behavioural therapy and life review methods. Design and methods A descriptive exploratory study with qualitative semi‐structured in‐depth interviews with six spouses of persons with dementia who had participated in the Norwegian CORDIAL study. The transcribed text was analysed by systematic text condensation. Result The main theme identified, “An everyday search for meaning,” referred to the stress experienced by the caregivers and their coping strategies in everyday life. Conclusion The caregivers had gained increased awareness of coping strategies in everyday life 6–12 months after the intervention. Caregivers who experienced fewer neuropsychiatric symptoms in their spouses with dementia benefitted most from the intervention. Relevance to clinical practice The study is relevant to clinical practice as interventions focusing on how to improve coping strategies may reduce caregiver stress and contribute to postponement of nursing home placement.

Suggested Citation

  • Janne Myhre & Johanne Bjørnstad Tonga & Ingun Dina Ulstein & Sevald Høye & Kari Kvaal, 2018. "The coping experiences of spouses of persons with dementia," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(3-4), pages 495-502, February.
    • Handle: RePEc:wly:jocnur:v:27:y:2018:i:3-4:p:e495-e502
    DOI: 10.1111/jocn.14047
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    References listed on IDEAS

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    1. Cohen-Mansfield, Jiska & Parpura-Gill, Aleksandra & Golander, Hava, 2006. "Salience of self-identity roles in persons with dementia: Differences in perceptions among elderly persons, family members and caregivers," Social Science & Medicine, Elsevier, vol. 62(3), pages 745-757, February.
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    Cited by:

    1. Linda Rykkje & Oscar Tranvåg, 2019. "Caring for One’s Wife With Dementia—at Home: Older Husbands’ Experiences With Managing Challenges of Everyday Life," SAGE Open, , vol. 9(1), pages 21582440198, February.

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