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Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China

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Listed:
  • Shuai Liu
  • Chonghui Li
  • Zhihong Shi
  • Xiaodan Wang
  • Yuying Zhou
  • Shuling Liu
  • Jing Liu
  • Tao Yu
  • Yong Ji

Abstract

Aims and objectives To evaluate caregiver burden and factors that influence this burden among caregivers and patients with Alzheimer's disease in China. Background Long‐term care can reduce the quality of life for caregivers and result in both mental and physical exhaustion. However, little is known about caregiver burden and associated factors in China. Design The study had a quantitative cross‐sectional design. Methods A total of 309 caregivers and their patients were included in the study. The patients' cognitive, psychological and functional status and their caregivers' burden, sleep quality and mental state were evaluated. Descriptive analyses, single‐factor regression and stepwise factor regression were used to determine the effects of various factors on caregiver burden. Results Older females and spouses still play an important role in providing family care for those with dementia. Most of the caregivers were the sole full‐time caregiver and had little time for themselves. Sleepiness was a common physical problem for caregivers, and some of them had moderate to severe depression and anxiety. A lower functional status of the patient was associated with higher caregiver burden. Poorer physical status compared with before caregiving began, lower life satisfaction, and higher degrees of depression and anxiety were associated with higher caregiver burden. Conclusion Depression, anxiety and sleep problems are the main challenges that are faced by family caregivers of patients with Alzheimer's disease. Caregivers' functional status, lower life satisfaction, depression and anxiety influenced caregiver burden. Caregiver burden was related to the severity of the patient's dementia and the personal factors of the caregivers. Relevance to clinical practice To provide information about caregivers' current status while caring for patients with Alzheimer's disease and to understand caregiver burden and its related factors. Professionals who work with Alzheimer's disease should pay more attention to caregiver burden, especially those with mental and physical problems.

Suggested Citation

  • Shuai Liu & Chonghui Li & Zhihong Shi & Xiaodan Wang & Yuying Zhou & Shuling Liu & Jing Liu & Tao Yu & Yong Ji, 2017. "Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(9-10), pages 1291-1300, May.
    • Handle: RePEc:wly:jocnur:v:26:y:2017:i:9-10:p:1291-1300
    DOI: 10.1111/jocn.13601
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    References listed on IDEAS

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    1. Cherie Simpson & Patricia Carter, 2013. "Dementia behavioural and psychiatric symptoms: effect on caregiver's sleep," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(21-22), pages 3042-3052, November.
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    Cited by:

    1. Chen Xiong & Melissa Biscardi & Arlene Astell & Emily Nalder & Jill I Cameron & Alex Mihailidis & Angela Colantonio, 2020. "Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review," PLOS ONE, Public Library of Science, vol. 15(4), pages 1-22, April.
    2. Ruttana Phetsitong & Patama Vapattanawong & Rosie Mayston & Martin Prince & Kia-Chong Chua, 2022. "In Caring for Older People in Low- and Middle-Income Countries, Do Older Caregivers Have a High Level of Care Burden and Psychological Morbidity Compared to Younger Caregivers?," IJERPH, MDPI, vol. 19(24), pages 1-12, December.
    3. Sharon Anderson & Jasneet Parmar & Bonnie Dobbs & Peter George J. Tian, 2021. "A Tale of Two Solitudes: Loneliness and Anxiety of Family Caregivers Caring in Community Homes and Congregate Care," IJERPH, MDPI, vol. 18(19), pages 1-19, September.
    4. Longobardo, Luz María Peña & Rodríguez-Sánchez, Beatriz & Oliva, Juan, 2023. "Does becoming an informal caregiver make your health worse? A longitudinal analysis across Europe," Economics & Human Biology, Elsevier, vol. 50(C).
    5. Leticia García-Mochón & Luz María Peña-Longobardo & María del Río-Lozano & Juan Oliva-Moreno & Isabel Larrañaga-Padilla & María del Mar García-Calvente, 2019. "Determinants of Burden and Satisfaction in Informal Caregivers: Two Sides of the Same Coin? The CUIDAR-SE Study," IJERPH, MDPI, vol. 16(22), pages 1-13, November.
    6. Jufang Li & Yun Li & Ping Li, 2021. "Perceived Grief Among Caregivers of Patients With Dementia in China," Clinical Nursing Research, , vol. 30(1), pages 70-81, January.

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