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The personal experience of living with chronic heart failure: a qualitative meta‐synthesis of the literature

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  • Maddi Olano‐Lizarraga
  • Cristina Oroviogoicoechea
  • Begoña Errasti‐Ibarrondo
  • Maribel Saracíbar‐Razquin

Abstract

Aims and objectives To determine, from a systematic literature review, the experience of living with heart failure and to propose some practice guidelines and research questions. Background Chronic heart failure has been one of the fastest growing illnesses in recent decades, with almost 23 million people affected worldwide. This complex syndrome has multiple causes and appears when underlying heart disease is advanced. Currently, heart failure has no cure and leads to a significant deterioration in patients’ quality of life. Design Qualitative meta‐synthesis. Methods A qualitative meta‐synthesis was conducted to extract and analyse qualitative research from the Cochrane, PubMed, CINAHL, PsycINFO, Web of Science and Cuiden databases. Snowball sampling and a manual search were performed to identify other relevant studies. Results Twenty‐five qualitative studies were selected. The findings indicate that there are three main themes that describe the phenomenon. The first theme refers to the experiences related to the beginning of the process. The second theme is connected with the effects on the person: physical, emotional, social and spiritual changes. The third theme is linked with how to live with heart failure despite the illness, including the adjustment and coping process and how external resources can help them to manage. Conclusions Heart failure has a major impact on the entire person, but some areas have not been addressed. By creating new tools to understand and evaluate the impact of this illness and interventions that prevent or improve some situations, we can promote the well‐being and the quality of life of this population. Relevance to clinical practice Nurses must have a personal knowledge of the experiences and needs of the patients. To do this, nurses should create care environments that promote an exchange of experiences and knowledge between the nurse and the patient and family.

Suggested Citation

  • Maddi Olano‐Lizarraga & Cristina Oroviogoicoechea & Begoña Errasti‐Ibarrondo & Maribel Saracíbar‐Razquin, 2016. "The personal experience of living with chronic heart failure: a qualitative meta‐synthesis of the literature," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(17-18), pages 2413-2429, September.
  • Handle: RePEc:wly:jocnur:v:25:y:2016:i:17-18:p:2413-2429
    DOI: 10.1111/jocn.13285
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    References listed on IDEAS

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    1. Lawrence Liao & Larry Allen & David Whellan, 2008. "Economic Burden of Heart Failure in the Elderly," PharmacoEconomics, Springer, vol. 26(6), pages 447-462, June.
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    Cited by:

    1. Lena Andersson & Lena Nordgren, 2019. "Heart Failure Patients’ Perceptions of Received and Wanted Information: A Cross-Sectional Study," Clinical Nursing Research, , vol. 28(3), pages 340-355, March.
    2. Alessia Martina Trenta & Davide Ausili & Rosario Caruso & Cristina Arrigoni & Massimo Moro & Tiziana Nania & Ercole Vellone & Federica Dellafiore, 2021. "Living with Heart Failure during the COVID-19 Pandemic: An Interpretative Phenomenological Analysis," Clinical Nursing Research, , vol. 30(7), pages 1071-1078, September.
    3. Malin Östman & Siv Bäck‐Pettersson & Annelie J. Sundler & Ann‐Helén Sandvik, 2021. "Nurses’ experiences of continuity of care for patients with heart failure: A thematic analysis," Journal of Clinical Nursing, John Wiley & Sons, vol. 30(1-2), pages 276-286, January.
    4. Ivana Maria Rosi & Francesca Bombardieri & Daniele Steri & Mimma Sternativo & Stefania Rancati, 2021. "“Those Plates That Save Me†: Experiences of Italian Patients With Implantable Cardioverter Defibrillator," Clinical Nursing Research, , vol. 30(5), pages 616-624, June.
    5. Maddi Olano-Lizarraga & Jesús Martín-Martín & Cristina Oroviogoicoechea & Maribel Saracíbar-Razquin, 2021. "Unexplored Aspects of the Meaning of Living with Chronic Heart Failure: A Phenomenological Study within the Framework of the Model of Interpersonal Relationship between the Nurse and the Person/Family," Clinical Nursing Research, , vol. 30(2), pages 171-182, February.
    6. Leire Ambrosio & David Perez-Manchon & Gloria Carvajal-Carrascal & Alejandra Fuentes-Ramirez & Neus Caparros & Manuel Ignacio Ruiz de Ocenda & Eva Timonet & Maria Victoria Navarta-Sanchez & Carmen Rod, 2021. "Psychometric Validation of the Living with Chronic Illness Scale in Patients with Chronic Heart Failure," IJERPH, MDPI, vol. 18(2), pages 1-14, January.
    7. Mahdi Moshki & Abdoljavad Khajavi & Shima Minaee & Farveh Vakilian & Haydeh Hashemizadeh, 2020. "Perceived benefits of the disease: A qualitative study of patients' experiences of heart failure," Nursing & Health Sciences, John Wiley & Sons, vol. 22(2), pages 464-471, June.

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