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Addressing the burden of stroke caregivers: a literature review

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  • Deborah Jacks Camak

Abstract

Aims and objectives To examine the empirical literature regarding the risk of burden experienced by the older adult caregiver of the stroke survivor. The scope of this review was limited to older adult family members caring for older adult stroke survivors as evidenced in the literature written between the years of 2009–2014. Background This article will explore published research within the past five years (2009–2014) that addresses the issue of burden among older adult caregivers of stroke survivors in addition to the implication for the changes needed within the nursing profession to mitigating the burden experienced by the caregiver. Many stroke survivors are in their 6th decade of life or older, with caregivers approximately the same age. This literature review specifically focuses on the role of nursing and the issue of caregiver burden. Design Literature Review. Methods A review of the literature published between 2009–2014 related to the lived experience of caregivers of stroke survivors and the role of nursing related to mitigating caregiver burden. Results Numerous factors impact the lived experience of caregivers providing care for the stroke survivor. Assuming the role of caregiver has an inherent risk which can result in health compromises for the caregiver. It is the responsibility of the nurse to assess, design interventions and provide education to prepare the caregiver for the demands of the role. Conclusions The literature review has shown that research regarding the risk of caregiver burden and the resulting health compromise is scarce. In addition, there is a lack of evidence‐based nursing interventions aimed at assuaging the risk of caregiver burden. Relevance to clinical practice Caregiver stress culminating in burden is commonly a reason for the eventual institutionalisation of the stroke survivor. Critically assessing and providing for the physical, psychosocial and educational support needs of stroke caregivers will assist in mitigating the daily burden experienced by the caregiver. Caregiver burden often results in psychological and physical health compromise for the caregiver. This literature review will address the role of the caregiver and the responsibilities of nursing to meet the needs of the caregiver.

Suggested Citation

  • Deborah Jacks Camak, 2015. "Addressing the burden of stroke caregivers: a literature review," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(17-18), pages 2376-2382, September.
  • Handle: RePEc:wly:jocnur:v:24:y:2015:i:17-18:p:2376-2382
    DOI: 10.1111/jocn.12884
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    References listed on IDEAS

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    1. Yea‐Ing L Shyu & Li‐Min Kuo & Min‐Chi Chen & Sien‐Tsong Chen, 2010. "A clinical trial of an individualised intervention programme for family caregivers of older stroke victims in Taiwan," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(11‐12), pages 1675-1685, June.
    2. Nan Greenwood & Ann Mackenzie, 2010. "An exploratory study of anxiety in carers of stroke survivors," Journal of Clinical Nursing, John Wiley & Sons, vol. 19(13‐14), pages 2032-2038, July.
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    Cited by:

    1. Dinja J van der Veen & Carola M E Döpp & Petra C Siemonsma & Maria W G Nijhuis-van der Sanden & Bert J M de Swart & Esther M Steultjens, 2019. "Factors influencing the implementation of Home-Based Stroke Rehabilitation: Professionals’ perspective," PLOS ONE, Public Library of Science, vol. 14(7), pages 1-16, July.
    2. Eun‐Young Kim & Hyun‐E Yeom, 2016. "Influence of home care services on caregivers' burden and satisfaction," Journal of Clinical Nursing, John Wiley & Sons, vol. 25(11-12), pages 1683-1692, June.
    3. Soheila Shamsikhani & Fazlollah Ahmadi & Anoshirvan Kazemnejad & Mojtaba Vaismoradi, 2021. "Typology of Family Support in Home Care for Iranian Older People: A Qualitative Study," IJERPH, MDPI, vol. 18(12), pages 1-14, June.
    4. Chow, Esther O.W. & Wong, Yuk Yi & Fok, Doris Y.H. & Liao, Xu & Li, Chaoyu, 2021. "Positive life stories of Stroke-Survivor's spousal caregiving in Hong Kong: Lessons for policy and practice," Social Science & Medicine, Elsevier, vol. 291(C).
    5. Catherine C. Shoults & Michael W. Rutherford & Aaron S. Kemp & Merideth A. Addicott & Aliza Brown & Carolyn J. Greene & Corey J. Hayes & Jennifer M. Gan & Linda J. Larson-Prior & Jonathan P. Bona, 2023. "Analysis of Caregiver Burden Expressed in Social Media Discussions," IJERPH, MDPI, vol. 20(3), pages 1-11, January.
    6. Sunna Rannikko & Minna Stolt & Riitta Suhonen & Helena Leino‐Kilpi, 2019. "Ethical issues in the care of patients with stroke: A scoping review," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(1-2), pages 20-31, January.
    7. Catherine Hudson & Kate Radford & Jade Kettlewell, 2022. "A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors," IJERPH, MDPI, vol. 19(23), pages 1-17, December.
    8. Ashley Kable & Amanda Baker & Dimity Pond & Erica Southgate & Alyna Turner & Christopher Levi, 2019. "Health professionals’ perspectives on the discharge process and continuity of care for stroke survivors discharged home in regional Australia: A qualitative, descriptive study," Nursing & Health Sciences, John Wiley & Sons, vol. 21(2), pages 253-261, June.

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