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Finding privacy from a public death: a qualitative exploration of how a dedicated space for end‐of‐life care in an acute hospital impacts on dying patients and their families

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  • Susan Slatyer
  • Catherine Pienaar
  • Anne M. Williams
  • Karen Proctor
  • Laura Hewitt

Abstract

Aims and objectives To explore the experiences and perceptions of hospital staff caring for dying patients in a dedicated patient/family room (named Lotus Room). Background Dying in hospital is a common outcome for people across the world. However, noise and activity in acute environments present barriers to quality end‐of‐life care. This is of concern because care provided to dying patients has been shown to affect both the patients and the bereaved families. Design A qualitative descriptive approach was used. Methods Semi‐structured interviews were conducted with 17 multidisciplinary staff and seven families provided information through an investigator‐developed instrument. Results Qualitative data analysis generated three categories describing: Dying in an hospital; The Lotus Room; and the Outcomes for patients and families. The Lotus Room was seen as a large, private and, ultimately, safe space for patients and families within the public hospital environment. Family feedback supported staff perspectives that the Lotus Room facilitated family presence and communication. Conclusions The privacy afforded by the Lotus Room within this acute hospital provided benefits for the dying patients and grieving families. Improved outcomes included a peaceful death for patients, which may have assisted the family with their bereavement. Relevance to clinical practice This study provides evidence of how the physical environment can address well‐established barriers to quality end‐of‐life care in acute hospitals.

Suggested Citation

  • Susan Slatyer & Catherine Pienaar & Anne M. Williams & Karen Proctor & Laura Hewitt, 2015. "Finding privacy from a public death: a qualitative exploration of how a dedicated space for end‐of‐life care in an acute hospital impacts on dying patients and their families," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(15-16), pages 2164-2174, August.
  • Handle: RePEc:wly:jocnur:v:24:y:2015:i:15-16:p:2164-2174
    DOI: 10.1111/jocn.12845
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    References listed on IDEAS

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    1. Natalie Pattison & Susan M Carr & Chris Turnock & Shelley Dolan, 2013. "‘Viewing in slow motion’: patients', families', nurses' and doctors' perspectives on end‐of‐life care in critical care," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(9-10), pages 1442-1454, May.
    2. Street, Annette F. & Love, Anthony, 2005. "Dimensions of privacy in palliative care: views of health professionals," Social Science & Medicine, Elsevier, vol. 60(8), pages 1795-1804, April.
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    Cited by:

    1. Anita Raymond & Susan F Lee & Melissa J Bloomer, 2017. "Understanding the bereavement care roles of nurses within acute care: a systematic review," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(13-14), pages 1787-1800, July.

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