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The lived experience of fathers of preterm infants in the Neonatal Intensive Care Unit: a systematic review of qualitative studies

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  • Livio Provenzi
  • Elena Santoro

Abstract

Aims and objectives To systematically review the experience of fathers of preterm infants hospitalised in the Neonatal Intensive Care Unit. Background Family‐centred care is more and more acknowledged in Neonatal Intensive Care Units, advocating for active engagement of both parents in the care journey. Nonetheless, fathers' Neonatal Intensive Care Unit experience has received limited research attention. Design Systematic review of qualitative studies. Methods Four electronic databases (CINHAL, ISI Web of Science, PubMed, Scopus) were explored and studies published between 2000–2014 were included. Preferred Reporting Item for Systematic Reviews and Meta‐analysis (PRISMA) and Joanna Briggs Institute (JBI) Critical Appraisal Tool for Qualitative Studies guidelines were adopted. Key themes were extracted and synthesised. Results Five main themes resuming fathers' experience of preterm birth and Neonatal Intensive Care Unit stay were identified from 14 studies. Themes were: emotional roller‐coaster, paternal needs, coping strategies, self‐representation and caregiving engagement. These dimensions were found to be dynamically shaped across three critical turning points: preterm birth, Neonatal Intensive Care Unit stay and at home. Conclusions Neonatal Intensive Care Unit fathers of preterm infants experience ambivalence, a set of different needs and coping strategies. They modify their self‐representations along the Neonatal Intensive Care Unit journey and needs specific nursing support and intervention to sustain caregiving engagement and transition to parenthood. Relevance to clinical practice A systematic and deepened understanding of preterms' fathers lived experience in Neonatal Intensive Care Unit would be helpful to inform nursing practice. Specific action priorities are suggested within the frame of family‐centred care.

Suggested Citation

  • Livio Provenzi & Elena Santoro, 2015. "The lived experience of fathers of preterm infants in the Neonatal Intensive Care Unit: a systematic review of qualitative studies," Journal of Clinical Nursing, John Wiley & Sons, vol. 24(13-14), pages 1784-1794, July.
  • Handle: RePEc:wly:jocnur:v:24:y:2015:i:13-14:p:1784-1794
    DOI: 10.1111/jocn.12828
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    1. Luiza AK Hoga & Juliana RC Rodolpho & Priscila M Sato & Michelly CM Nunes & Ana LV Borges, 2014. "Adult men's beliefs, values, attitudes and experiences regarding contraceptives: a systematic review of qualitative studies," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(7-8), pages 927-939, April.
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    1. Pia Lundqvist & Janne Weis & Bengt Sivberg, 2019. "Parents’ journey caring for a preterm infant until discharge from hospital‐based neonatal home care—A challenging process to cope with," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(15-16), pages 2966-2978, August.
    2. Concetta Polizzi & Giovanna Perricone & Maria Regina Morales & Sofia Burgio, 2021. "A Study of Maternal Competence in Preterm Birth Condition, during the Transition from Hospital to Home: An Early Intervention Program’s Proposal," IJERPH, MDPI, vol. 18(16), pages 1-24, August.
    3. Pei‐Fan Mu & Mei‐Yin Lee & Yong‐Chuan Chen & Hui‐Chuan Yang & Shu‐Hua Yang, 2020. "Experiences of parents providing kangaroo care to a premature infant: A qualitative systematic review," Nursing & Health Sciences, John Wiley & Sons, vol. 22(2), pages 149-161, June.
    4. Gina Clarkson & Mary Jo Gilmer & Elizabeth Moore & Mary S. Dietrich & Brent A. McBride, 2019. "Cross‐sectional survey of factors associated with paternal involvement in the neonatal intensive care unit," Journal of Clinical Nursing, John Wiley & Sons, vol. 28(21-22), pages 3977-3990, November.

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