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Maintaining ordinariness around food: partners’ experiences of everyday life with a dying person

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  • Viktoria Wallin
  • Ida Carlander
  • Per‐Olof Sandman
  • Britt‐Marie Ternestedt
  • Cecilia Håkanson

Abstract

Aims and objectives To explore partners’ experiences of everyday life in caring for a dying person with eating deficiencies at home. Background When a dying person receives care at home, eating deficiencies can influence everyday life for family members, who often take responsibility for the provision of food and meals. The literature reveals this to be emotionally stressful. Partners of dying persons are challenged both as caregivers and as partners who will soon lose their life companion. There is a need for studies that provide enhanced understanding about the influence of dying persons’ eating deficiencies on their partners, from the perspective of everyday life. Design A qualitative design was chosen to obtain experience‐based knowledge of relevance for the clinical context of palliative home care. Methods Nine people were purposefully selected and interviewed three–six months after the death of their partner. Data collection and analysis were guided by an interpretive descriptive method. Results The partners described experiences of how eating deficiencies brought about changes in the participants’ everyday lives. Two patterns of experiences were identified: the challenge of doing the best for their dying partner around matters involving food and mealtimes, and experiences of striving to maintain ordinariness, including holding on to social values around food, despite experiences of unfamiliarity when the dying partners’ habits were changed. Conclusion Living close to a person who has eating deficiencies at the end of life is challenging, both from a caring perspective and for personal well‐being. Relevance to clinical practice The findings can assist palliative home care teams and other healthcare professionals to give support that goes beyond giving practical advice about food. Initiating talk about the current situation around food and meals at home, by posing questions and opening the way for conversations, is suggested.

Suggested Citation

  • Viktoria Wallin & Ida Carlander & Per‐Olof Sandman & Britt‐Marie Ternestedt & Cecilia Håkanson, 2014. "Maintaining ordinariness around food: partners’ experiences of everyday life with a dying person," Journal of Clinical Nursing, John Wiley & Sons, vol. 23(19-20), pages 2748-2756, October.
    • Handle: RePEc:wly:jocnur:v:23:y:2014:i:19-20:p:2748-2756
    DOI: 10.1111/jocn.12518
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    References listed on IDEAS

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    2. Sarah Nettleton & Emma Uprichard, 2011. "‘A Slice of Life’: Food Narratives and Menus from Mass-Observers in 1982 and 1945," Sociological Research Online, , vol. 16(2), pages 99-107, June.
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