The role of next of kin of patients with cancer: learning to navigate unpredictable caregiving situations

Aims and objectives The aims of this study are to develop knowledge about (1) the experiences of next of kin in caring for seriously ill patients with cancer and (2) the effects of strain and support on the next of kin's ability to cope. Background Better treatment has resulted in patients with cancer normally living longer. Because this treatment is typically administered in a polyclinic or at home, next of kin inherit the largely unknown and demanding role of caregiver. Design A qualitative, descriptive and interpretive design. Methods Focus group interviews were used. The sample comprised 16 adults who were the next of kin of patients with cancer. A thematic content analysis was performed, the text coded for meaning units, condensed and interpreted based on the understanding of the next of kin's role and ability to handle the situation. Results The role of next of kin is multifaceted and challenging. It is important for next of kin to be near and to take care of the sick. Next of kin's acceptance of the situation plays a crucial role in their ability to cope and to look forward. The unpredictability of the situation adds stress and affects the daily routines. Conclusions Providing next of kin with knowledge, support and guidance is important in helping them to understand and cope with the situation and to reduce the amount of strain that they experience in the caregiving role. Relevance to clinical practice This study emphasises the importance of health workers in possessing the knowledge and competence required to educate, guide and support the next of kin of those with cancer. Health workers should provide care to next of kin, and a support system for next of kin must also be available.