IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v22y2013i3-4p331-338.html
   My bibliography  Save this article

Factors that influence user satisfaction: tracheotomised home mechanical ventilation users’ experiences

Author

Listed:
  • Dagrunn N Dyrstad
  • Britt S Hansen
  • Evy M Gundersen

Abstract

Aims and objectives To describe the self‐reported life situation of users totally dependent on home mechanical ventilation (HMV) after tracheotomy and to identify factors associated with user satisfaction. Background HMV users are a small but growing group in society and among the most vulnerable individuals with chronic disabilities. The participants in the present study belong to an even more susceptible minority of this group, as they require round the clock ventilation at home through a tracheostomy, implying the need for continuous care. Their testimonies are important for the generation of new knowledge. Design A qualitative design using interviews. Methods Individual interviews were conducted with six participants and analysed by qualitative content analysis. Results The main theme that emerged different individual needs require a range of approaches was based on three sub‐themes: (1) Tailored information (2) Sensitivity in decision‐making and (3) Building trust and confidence. Information was perceived as crucial and participants described different experiences of receiving optimal information to not receiving information at all. Successful collaboration was perceived when the user was given the opportunity to participate in decision‐making about her/his treatment and care, where to live and how to organise daily life. Trust and confidence in the caregivers were important. Conclusion The participants highlighted the need for strategies to improve satisfaction. Their experiences varied depending on age, where they lived, who they encountered in the healthcare system and the level of family support. Our findings suggest that patients who perceive themselves as well informed at an early stage are more satisfied with treatment, decisions about their tracheotomy and their life situation. Relevance to clinical practice There is a lack of knowledge among healthcare providers, thus tailored, high competence and guidelines are required.

Suggested Citation

  • Dagrunn N Dyrstad & Britt S Hansen & Evy M Gundersen, 2013. "Factors that influence user satisfaction: tracheotomised home mechanical ventilation users’ experiences," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(3-4), pages 331-338, February.
  • Handle: RePEc:wly:jocnur:v:22:y:2013:i:3-4:p:331-338
    DOI: 10.1111/j.1365-2702.2012.04304.x
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/j.1365-2702.2012.04304.x
    Download Restriction: no

    File URL: https://libkey.io/10.1111/j.1365-2702.2012.04304.x?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:22:y:2013:i:3-4:p:331-338. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.