IDEAS home Printed from https://ideas.repec.org/a/wly/jocnur/v22y2013i11-12p1620-1628.html
   My bibliography  Save this article

Heart or lung transplanted patients' retrospective views on information and support while waiting for transplantation

Author

Listed:
  • Bodil Ivarsson
  • Björn Ekmehag
  • Trygve Sjöberg

Abstract

Aims and objectives To describe the patients' retrospective experiences of the information and support they received while on the heart or lung transplant waiting list. Background Patients differ in the way that they cope with the time spent waiting for a heart or lung transplant. Patients must already before the transplantation be taught about a new lifestyle, risk factors, medication, food restrictions and exercise, so they can take an active role and responsibility for disease management after transplantation. Little is known about patients' experiences of information and support in these situations. Design Qualitative descriptive design. Methods Sixteen patients (16–67 year) were strategically selected from one transplant centre in Sweden and interviewed six months after heart or lung transplantation. Using content analysis, transcribed data were organised into subcategories that reflected emerging categories. Results Three categories that describe patients' experiences of information and support have been identified: ‘Achieving confidence and trust by information and support’, ‘Experiencing a lack of input and understanding’ and ‘Struggling with a life‐threatening illness and an insecure future’. Each category consists of different subcategories. Conclusions Information and support in connection to heart or lung transplantation are a complex and multifaceted issue involving patient‐related, family‐related, disease‐related and treatment‐related factors as well as experiences related to the social situation, the healthcare system and society. Transplant patients are very vulnerable, and a deeper understanding of patients' experiences should help healthcare providers in optimising the care for these very sick patients. Relevance to clinical practice A holistic approach to the patient is necessary in meeting the needs of patients with chronic illness, especially patients with children at home, as well as the needs of their families. An important implication is the necessity to enhance awareness about transplant patients in society in general, in particular in other institutions, by sharing knowledge and by improving cooperation.

Suggested Citation

  • Bodil Ivarsson & Björn Ekmehag & Trygve Sjöberg, 2013. "Heart or lung transplanted patients' retrospective views on information and support while waiting for transplantation," Journal of Clinical Nursing, John Wiley & Sons, vol. 22(11-12), pages 1620-1628, June.
  • Handle: RePEc:wly:jocnur:v:22:y:2013:i:11-12:p:1620-1628
    DOI: 10.1111/j.1365-2702.2012.04284.x
    as

    Download full text from publisher

    File URL: https://doi.org/10.1111/j.1365-2702.2012.04284.x
    Download Restriction: no

    File URL: https://libkey.io/10.1111/j.1365-2702.2012.04284.x?utm_source=ideas
    LibKey link: if access is restricted and if your library uses this service, LibKey will redirect you to where you can use your library subscription to access this item
    ---><---

    Citations

    Citations are extracted by the CitEc Project, subscribe to its RSS feed for this item.
    as


    Cited by:

    1. Jisu Kim & Kyunghee Kim & Insil Jang, 2019. "Symptom Experience, Self-Care Adherence, and Quality of Life Among Heart Transplant Recipients in South Korea," Clinical Nursing Research, , vol. 28(2), pages 182-201, February.
    2. Susanna Ågren & Bodil Ivarsson & Helén Rönning, 2014. "The Unsteady Mainstay of the Family : Now Adult Children’s Retrospective View on Social Support in Relation to Their Parent’s Heart Transplantation," Nursing Research and Practice, Hindawi, vol. 2014, pages 1-7, November.

    More about this item

    Statistics

    Access and download statistics

    Corrections

    All material on this site has been provided by the respective publishers and authors. You can help correct errors and omissions. When requesting a correction, please mention this item's handle: RePEc:wly:jocnur:v:22:y:2013:i:11-12:p:1620-1628. See general information about how to correct material in RePEc.

    If you have authored this item and are not yet registered with RePEc, we encourage you to do it here. This allows to link your profile to this item. It also allows you to accept potential citations to this item that we are uncertain about.

    We have no bibliographic references for this item. You can help adding them by using this form .

    If you know of missing items citing this one, you can help us creating those links by adding the relevant references in the same way as above, for each refering item. If you are a registered author of this item, you may also want to check the "citations" tab in your RePEc Author Service profile, as there may be some citations waiting for confirmation.

    For technical questions regarding this item, or to correct its authors, title, abstract, bibliographic or download information, contact: Wiley Content Delivery (email available below). General contact details of provider: https://doi.org/10.1111/(ISSN)1365-2702 .

    Please note that corrections may take a couple of weeks to filter through the various RePEc services.

    IDEAS is a RePEc service. RePEc uses bibliographic data supplied by the respective publishers.