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Quality of life, anxiety and depression in ALS patients and their next of kin

Author

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  • Anneli G Olsson Ozanne
  • Susann Strang
  • Lennart I Persson

Abstract

Aim and objectives. The aims were to study health‐related quality of life, anxiety and depression in patients with amyotrophic lateral sclerosis and their next of kin and to compare these results with a subset of the general Swedish population. Thirty‐five pairs of patients with amyotrophic lateral sclerosis and their next of kin were studied. Background. Life changes in many ways when a person is diagnosed with amyotrophic lateral sclerosis. Comparison between patients, next of kin and the general population are needed to get a wider understanding of their quality of life, anxiety and depression. Design. A descriptive study. Methods. All participants were studied with the SF‐36 and the Hospital Anxiety and Depression Scale. Patients’ physical function was assessed by the amyotrophic lateral sclerosis Functional Rating Scale – Revised and the Norris scale. Results. A correlation was found in both the mental component summary in SF‐36 and in anxiety between the pairs of patients and their next of kin, while no correlation was found in the physical component summary or depression. These results were not related to the patients’ physical function. Both patients and their next of kin had some poorer ratings in SF‐36 and in anxiety and depression than the general Swedish population. Gender or age did not affect the estimates in any of the scales. Conclusions. The results indicate that both the patient and the next of kin are affected by the disease independent of physical disability. In most pairs of patient and next of kin, the mental component summary and anxiety were affected to a similar extent. Relevance to clinical practice. The results emphasise the need for medical and nursing support to both the patient and the next of kin soon after the diagnosis and during the course of the disease.

Suggested Citation

  • Anneli G Olsson Ozanne & Susann Strang & Lennart I Persson, 2011. "Quality of life, anxiety and depression in ALS patients and their next of kin," Journal of Clinical Nursing, John Wiley & Sons, vol. 20(1‐2), pages 283-291, January.
  • Handle: RePEc:wly:jocnur:v:20:y:2011:i:1-2:p:283-291
    DOI: 10.1111/j.1365-2702.2010.03509.x
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    Cited by:

    1. Petter Sandstedt & Susanne Littorin & Gunilla Cröde Widsell & Sverker Johansson & Kristina Gottberg & Charlotte Ytterberg & Mariann Olsson & Lotta Widén Holmqvist & Marie Kierkegaard, 2018. "Caregiver experience, health‐related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 27(23-24), pages 4321-4330, December.
    2. Benjamin Ilse & Tino Prell & Mario Walther & Viktor Hartung & Susanne Penzlin & Florian Tietz & Otto-Wilhelm Witte & Bernhard Strauss & Julian Grosskreutz, 2015. "Relationships Between Disease Severity, Social Support and Health-Related Quality of Life in Patients with Amyotrophic Lateral Sclerosis," Social Indicators Research: An International and Interdisciplinary Journal for Quality-of-Life Measurement, Springer, vol. 120(3), pages 871-882, February.
    3. Dan Geng & RuWei Ou & XiaoHui Miao & LiHong Zhao & QianQian Wei & XuePing Chen & Yan Liang & HuiFang Shang & Rong Yang, 2017. "Patients’ self‐perceived burden, caregivers’ burden and quality of life for amyotrophic lateral sclerosis patients: a cross‐sectional study," Journal of Clinical Nursing, John Wiley & Sons, vol. 26(19-20), pages 3188-3199, October.

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