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Burden of Sickle Cell Anaemia On Families of Patients

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  • Oluwole O. Famuyiwa

    (Department of Psychiatry, College of Medicine, University of Lagos, P.M.B. 12003, Lagos, Nigeria)

  • Olu O. Akinyanju

    (Clinical Haematology Unit, Department of Medicine, College of Medicine, University of Lagos, P.M.B. 12003, Lagos, Nigeria)

Abstract

This study examines the burden on the families of children with sickle cell anaemia in a naturalistic setting. Compared with a matched group of epileptics (N=76) families of sickle cell anaemia victims aged 12 years and below (N = 85) suffer greater burden on a standardised scale which encompasses several burden parameters. Family size and multiple incidence were the only clinico-demographic variables which exerted tangible total burden effects. Financial expenses incurred on medical care; effect on physical health of family members; sense of despair regarding expectation of crisis; sleeplessness and frustration in any member of the family; and abandonment of joint family activities were the commonest causes of burden. There was a significant correlation between total burden scores and frequency of crisis (r=0.79). It is suggested that clinicians should pay attention not only to deficiencies but also strengths and coping capacity of families which can be reinforced to formulate meaningful intervention programmes.

Suggested Citation

  • Oluwole O. Famuyiwa & Olu O. Akinyanju, 1998. "Burden of Sickle Cell Anaemia On Families of Patients," International Journal of Social Psychiatry, , vol. 44(3), pages 170-180, September.
    • Handle: RePEc:sae:socpsy:v:44:y:1998:i:3:p:170-180
    DOI: 10.1177/002076409804400303
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