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Patient Agency: Manifestations of Individual Agency Among People With Health Problems

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  • Jae-Mahn Shim

Abstract

This paper conducts a critical review of qualitative studies of the life experiences of people with health problems and proposes the notion of patient agency. It highlights that discontinuous continuity in life is the key category of life experiences around which individuals reveal agency. In particular, the paper first discovers multiple dimensions of life that individuals with illness engage in. It subsequently identifies four different manners in which discontinuous continuity in life is manifested along the multiple dimensions, such as single-dimensional rescaling, multi-dimensional shift, multi-dimensional embedding, and submission. These achievements and the remaining limitations in the medical sociology of patient agency are on a par with those in general sociological theories of individual agency. The paper proposes a set of future research agendas to expand these limits. This theory of patient agency is expected to renew approaches to how people lead their life in illness. It also suggests that patience should be a valid category of agency for general sociological imagination.

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  • Jae-Mahn Shim, 2022. "Patient Agency: Manifestations of Individual Agency Among People With Health Problems," SAGE Open, , vol. 12(1), pages 21582440221, March.
    • Handle: RePEc:sae:sagope:v:12:y:2022:i:1:p:21582440221085010
    DOI: 10.1177/21582440221085010
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    1. Kagawa-Singer, Marjorie, 1993. "Redefining health: Living with cancer," Social Science & Medicine, Elsevier, vol. 37(3), pages 295-304, August.
    2. Caiata-Zufferey, Maria, 2015. "Genetically at-risk status and individual agency. A qualitative study on asymptomatic women living with genetic risk of breast/ovarian cancer," Social Science & Medicine, Elsevier, vol. 132(C), pages 141-148.
    3. Albrecht, Gary L. & Devlieger, Patrick J., 1999. "The disability paradox: high quality of life against all odds," Social Science & Medicine, Elsevier, vol. 48(8), pages 977-988, April.
    4. la Cour, Peter & Hvidt, Niels C., 2010. "Research on meaning-making and health in secular society: Secular, spiritual and religious existential orientations," Social Science & Medicine, Elsevier, vol. 71(7), pages 1292-1299, October.
    5. Parsons, Janet A. & Eakin, Joan M. & Bell, Robert S. & Franche, Renée-Louise & Davis, Aileen M., 2008. ""So, are you back to work yet?" Re-conceptualizing 'work' and 'return to work' in the context of primary bone cancer," Social Science & Medicine, Elsevier, vol. 67(11), pages 1826-1836, December.
    6. Kaiser, Karen, 2008. "The meaning of the survivor identity for women with breast cancer," Social Science & Medicine, Elsevier, vol. 67(1), pages 79-87, July.
    7. Aujoulat, Isabelle & Marcolongo, Renzo & Bonadiman, Leopoldo & Deccache, Alain, 2008. "Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control," Social Science & Medicine, Elsevier, vol. 66(5), pages 1228-1239, March.
    8. Fligstein, Neil, 2001. "Social Skill and the Theory of Fields," Center for Culture, Organizations and Politics, Working Paper Series qt26m187b1, Center for Culture, Organizations and Politics of theInstitute for Research on Labor and Employment, UC Berkeley.
    9. Scott, S. & Prior, L. & Wood, F. & Gray, J., 2005. "Repositioning the patient: the implications of being 'at risk'," Social Science & Medicine, Elsevier, vol. 60(8), pages 1869-1879, April.
    10. Bell, Kirsten, 2009. "'If it almost kills you that means it's working!' Cultural models of chemotherapy expressed in a cancer support group," Social Science & Medicine, Elsevier, vol. 68(1), pages 169-176, January.
    11. Trusson, Diane & Pilnick, Alison & Roy, Srila, 2016. "A new normal?: Women's experiences of biographical disruption and liminality following treatment for early stage breast cancer," Social Science & Medicine, Elsevier, vol. 151(C), pages 121-129.
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