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Basing Information on Comprehensive, Critically Appraised, and Up-to-Date Syntheses of the Scientific Evidence: An Update from the International Patient Decision Aid Standards

Author

Listed:
  • Tammy C. Hoffmann

    (Institute for Evidence-Based Healthcare, Faculty of Health Sciences and Medicine, Bond University, Gold Coast, Queensland, Australia)

  • Mina Bakhit

    (Institute for Evidence-Based Healthcare, Faculty of Health Sciences and Medicine, Bond University, Gold Coast, Queensland, Australia)

  • Marie-Anne Durand

    (Universite Toulouse III Paul Sabatier, Toulouse, France
    The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA)

  • Lilisbeth Perestelo-Pérez

    (Evaluation Unit, Canary Islands Health Service, REDISSEC, Tenerife, Spain)

  • Catherine Saunders

    (The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA
    Department of Psychiatry, Dartmouth-Hitchcock Medical Centre, Lebanon NH, USA)

  • Juan P. Brito

    (Knowledge Evaluation and Research Unit, Mayo Clinic, Minnesota, Rochester, MN, USA)

Abstract

Background Patients and clinicians expect the information in patient decision aids to be based on the best available research evidence. The objectives of this International Patient Decision Aid Standards (IPDAS) review were to 1) check the currency of, and where needed, update evidence for the domain of “basing the information in decision aids on comprehensive, critically appraised, and up-to-date syntheses of the evidence†; 2) analyze the evidence characteristics of decision aids; and 3) propose updates to relevant IPDAS criteria. Methods We searched MEDLINE and PubMed to inform updates of this domain’s definitions, justifications, and components. We also searched 5 sources to identify all publicly available decision aids ( N = 471). Two assessors independently extracted each aid’s evidence characteristics. Results Minor updates to the definitions and theoretical justifications of this IPDAS domain are provided and changes to relevant IPDAS criteria proposed. Nearly all aids (97%) provided a year of creation/update, but most (81%) did not report an explicit update or expiration policy. No scientific references were cited in 33% of aids. Of the 314 that cited at least 1 reference, 39% cited at least 1 guideline, 44% cited at least 1 systematic review, and 23% cited at least 1 randomized trial. In 35%, it was unclear what statement in the aid the citations referred to. Only 14% reported any of the processes used to find and decide on evidence inclusion. Only 14% reported the evidence quality. Many emerging issues and future research areas were identified. Conclusions Although many emerging issues need to be addressed, this IPDAS domain is validated and criteria refined. High-quality patient decision aids should be based on comprehensive and up-to-date syntheses of critically appraised evidence.

Suggested Citation

  • Tammy C. Hoffmann & Mina Bakhit & Marie-Anne Durand & Lilisbeth Perestelo-Pérez & Catherine Saunders & Juan P. Brito, 2021. "Basing Information on Comprehensive, Critically Appraised, and Up-to-Date Syntheses of the Scientific Evidence: An Update from the International Patient Decision Aid Standards," Medical Decision Making, , vol. 41(7), pages 755-767, October.
    • Handle: RePEc:sae:medema:v:41:y:2021:i:7:p:755-767
    DOI: 10.1177/0272989X21996622
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    References listed on IDEAS

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    1. Paul K. J. Han & Christine Lary & Adam Black & Caitlin Gutheil & Hayley Mandeville & Jason Yahwak & Mayuko Fukunaga, 2019. "Effects of Personalized Risk Information on Patients Referred for Lung Cancer Screening with Low-Dose CT," Medical Decision Making, , vol. 39(8), pages 950-961, November.
    2. Nick Bansback & Mark Harrison & Carlo Marra, 2016. "Does Introducing Imprecision around Probabilities for Benefit and Harm Influence the Way People Value Treatments?," Medical Decision Making, , vol. 36(4), pages 490-502, May.
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    Cited by:

    1. Holly O. Witteman & Ruth Ndjaboue & Gratianne Vaisson & Selma Chipenda Dansokho & Bob Arnold & John F. P. Bridges & Sandrine Comeau & Angela Fagerlin & Teresa Gavaruzzi & Melina Marcoux & Arwen Pieter, 2021. "Clarifying Values: An Updated and Expanded Systematic Review and Meta-Analysis," Medical Decision Making, , vol. 41(7), pages 801-820, October.
    2. Dawn Stacey & Robert J. Volk, 2021. "The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0," Medical Decision Making, , vol. 41(7), pages 729-733, October.

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