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Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making

Author

Listed:
  • Haoyang Yan

    (Department of Psychology, University of Michigan, Ann Arbor, MI, USA)

  • Patricia J. Deldin

    (Department of Psychology, University of Michigan, Ann Arbor, MI, USA
    Department of Psychiatry, University of Michigan, Ann Arbor, MI, USA)

  • Stephanie K. Kukora

    (C.S. Mott Children’s Hospital and Department of Pediatrics, Michigan Medicine, Ann Arbor, MI, USA)

  • Cynthia Arslanian-Engoren

    (Department of Health Behavior and Biological Sciences, School of Nursing, University of Michigan, Ann Arbor, MI, USA)

  • Kenneth Pituch

    (C.S. Mott Children’s Hospital and Department of Pediatrics, Michigan Medicine, Ann Arbor, MI, USA)

  • Brian J. Zikmund-Fisher

    (Department of Health Behavior and Health Education, University of Michigan, Ann Arbor, MI, USA
    Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA)

Abstract

Purpose Parents who face goals-of-care tracheostomy decisions may lack an understanding of challenges affecting their child’s and family’s long-term quality of life (QOL) to accurately forecast possible outcomes for decision making. We sought to examine whether and how parents’ narratives of the child’s and family’s long-term QOL influence parental tracheostomy decisions and forecasting. Method We recruited US adult Amazon Mechanical Turk participants ( N = 1966) who self-reported having a child (

Suggested Citation

  • Haoyang Yan & Patricia J. Deldin & Stephanie K. Kukora & Cynthia Arslanian-Engoren & Kenneth Pituch & Brian J. Zikmund-Fisher, 2021. "Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making," Medical Decision Making, , vol. 41(3), pages 305-316, April.
  • Handle: RePEc:sae:medema:v:41:y:2021:i:3:p:305-316
    DOI: 10.1177/0272989X21990693
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    References listed on IDEAS

    as
    1. Dillard, Amanda J. & Fagerlin, Angela & Cin, Sonya Dal & Zikmund-Fisher, Brian J. & Ubel, Peter A., 2010. "Narratives that address affective forecasting errors reduce perceived barriers to colorectal cancer screening," Social Science & Medicine, Elsevier, vol. 71(1), pages 45-52, July.
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