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Do Shared Decision-Making Measures Reflect Key Elements of Shared Decision Making? A Content Review of Coding Schemes

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  • Marleen Kunneman

    (Department of Medical Psychology, Amsterdam University Medical Center, University of Amsterdam, Amsterdam, the Netherlands
    Knowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN, USA
    Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Zuid-Holland, the Netherlands)

  • Inge Henselmans

    (Department of Medical Psychology, Amsterdam University Medical Center, University of Amsterdam, Amsterdam, the Netherlands)

  • Fania R. Gärtner

    (Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Zuid-Holland, the Netherlands)

  • Hanna Bomhof-Roordink

    (Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Zuid-Holland, the Netherlands)

  • Arwen H. Pieterse

    (Medical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Zuid-Holland, the Netherlands)

Abstract

Background . There is a growing need for valid shared decision-making (SDM) measures. We aimed to determine whether the items of extant SDM observer-based coding schemes assess the 4 key elements of SDM. Methods . Items of SDM coding schemes were extracted and categorized. Except for the 4 key elements of SDM (fostering choice awareness, informing about options, discussing patient preferences, and making a decision), (sub)categories were created inductively. Two researchers categorized items independently and in duplicate. Results . Five of 12 coding schemes assessed all 4 SDM elements. Seven schemes did not measure “fostering choice awareness,†and 3 did not measure “discussing patient preferences.†Seventy of 194 items (36%) could not be classified into one of the key SDM elements. Items assessing key SDM elements most often assessed “informing about options†( n = 57/124, 46%). Conclusion . Extant SDM coding schemes often do not assess all key SDM elements and have a strong focus on information provision while other crucial elements of SDM are underrepresented. Caution is therefore needed in reporting and interpreting the resulting SDM scores.

Suggested Citation

  • Marleen Kunneman & Inge Henselmans & Fania R. Gärtner & Hanna Bomhof-Roordink & Arwen H. Pieterse, 2019. "Do Shared Decision-Making Measures Reflect Key Elements of Shared Decision Making? A Content Review of Coding Schemes," Medical Decision Making, , vol. 39(7), pages 886-893, October.
    • Handle: RePEc:sae:medema:v:39:y:2019:i:7:p:886-893
    DOI: 10.1177/0272989X19874347
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