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Participation Dynamics in Population-Based Longitudinal HIV Surveillance in Rural South Africa

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  • Joseph Larmarange
  • Joël Mossong
  • Till Bärnighausen
  • Marie Louise Newell

Abstract

Population-based HIV surveillance is crucial to inform understanding of the HIV pandemic and evaluate HIV interventions, but little is known about longitudinal participation patterns in such settings. We investigated the dynamics of longitudinal participation patterns in a high HIV prevalence surveillance setting in rural South Africa between 2003 and 2012, taking into account demographic dynamics. At any given survey round, 22,708 to 30,495 persons were eligible. Although the yearly participation rates were relatively modest (26% to 46%), cumulative rates increased substantially with multiple recruitment opportunities: 68% of eligible persons participated at least once, 48% at least twice and 31% at least three times after five survey rounds. We identified two types of study fatigue: at the individual level, contact and consent rates decreased with multiple recruitment opportunities and, at the population level, these rates also decreased over calendar time, independently of multiple recruitment opportunities. Using sequence analysis and hierarchical clustering, we identified three broad individual participation profiles: consenters (20%), switchers (43%) and refusers (37%). Men were over represented among refusers, women among consenters, and temporary non-residents among switchers. The specific subgroup of persons who were systemically not contacted or refusers constitutes a challenge for population-based surveillance and interventions.

Suggested Citation

  • Joseph Larmarange & Joël Mossong & Till Bärnighausen & Marie Louise Newell, 2015. "Participation Dynamics in Population-Based Longitudinal HIV Surveillance in Rural South Africa," PLOS ONE, Public Library of Science, vol. 10(4), pages 1-16, April.
  • Handle: RePEc:plo:pone00:0123345
    DOI: 10.1371/journal.pone.0123345
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    Cited by:

    1. Mark E. McGovern & Kobus Herbst & Frank Tanser & Tinofa Mutevedzi & David Canning & Dickman Gareta & Deenan Pillay & Till Bärnighausen, 2016. "Do Gifts Increase Consent to Home-based HIV Testing? A Difference-in-Differences Study in Rural KwaZulu-Natal, South Africa," CHaRMS Working Papers 16-05, Centre for HeAlth Research at the Management School (CHaRMS).
    2. McGovern, Mark E. & Canning, David & Bärnighausen, Till, 2018. "Accounting for non-response bias using participation incentives and survey design: An application using gift vouchers," Economics Letters, Elsevier, vol. 171(C), pages 239-244.
    3. Kathy Baisley & Natsayi Chimbindi & Nondumiso Mthiyane & Sian Floyd & Nuala McGrath & Deenan Pillay & Janet Seeley & Thembelihle Zuma & Jaco Dreyer & Dickman Gareta & Theresa Smit & Tinofa Mutevedzi &, 2018. "High HIV incidence and low uptake of HIV prevention services: The context of risk for young male adults prior to DREAMS in rural KwaZulu-Natal, South Africa," PLOS ONE, Public Library of Science, vol. 13(12), pages 1-17, December.
    4. Mark McGovern & David Canning & Till Bärnighausen, 2018. "Accounting for Non-Response Bias using Participation Incentives and Survey Design," CHaRMS Working Papers 18-02, Centre for HeAlth Research at the Management School (CHaRMS).

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